Out Of Control – Me On Steroids

There I was, having been told that there was a good chance that my hearing loss was due to my own actions. Not an easy thing to deal with. Part of me absolutely felt angry with myself, was blaming myself; I have a natural tendency to be very hard on myself – especially when the consequences of my actions turn out to be severely negative. But, there was also another part that just felt confused, because whilst the second most recent overdose was certainly a serious one, the most recent one was one where I didn’t ingest more than about half a teaspoon of the chemical, and I couldn’t quite understand how it could have had such a drastic effect on my hearing. But, clearly it had.

The ENT specialist had prescribed a high dose of Prednisolone which I was to take for a week in the hope that it may reverse some of the recent hearing loss. The name of the medication did ring a bell at the time, but not loudly enough for me to clock why, so I went down to the hospital pharmacy and picked the medicine up. It wasn’t until I got home that I remembered that this was a medication which a previous GP had refused to prescribe when my asthma was really bad, because she felt it was too much of a risk, putting me on it. There were two reasons for this: firstly, that people with a history of serious mental health issues are particularly prone to react badly to this medicine, and, secondly, that I have in the past had extreme adverse reactions to three other medications [one of which I was reacting to when I took the second most recent overdose], so the doctors are always very cautious about prescribing any non-essential new meds to me.

But, there I was with the medication in my hand, not knowing whether or not it would really be a good idea to take it. Yes, this medication could potentially save me from needing cochlear implants down the line, but, at the same time, if I did have a really bad reaction I could end up putting myself at considerable risk. The ENT specialist wasn’t someone who knew me well [or at all, really], so when he prescribed it, he did it on the same premises he would for anyone else; ‘Worth trying, no harm done if it doesn’t work’, whereas I knew that this medication could spell real trouble for me.

There was a part of me that was genuinely scared of a bad reaction; I knew perfectly well the horrible feeling of being out of control because of a medication. I had been through it three times.. Yet, there was another part that so badly wanted to be able to do something to reverse the damage I had apparently caused.

I spent a week going back and forth, unable to decide what to do, talking it through with lots of people, knowing full well that, ultimately, it was still my decision to make. I did speak to my GP [well, technically, the receptionist spoke to her on my behalf], and she said that it would be ‘perfectly fine’ for me to take the steroids, and – after all – I had had no adverse reactions to the steroid injections I was given when treated for anaphylaxis.

In the end I decided that I would give it a go, because I knew that if I didn’t I would always be wondering ‘What if..? What if..?’.

Still, to be on the safe side, I decided to start the course early Monday morning, so that if I did have a bad reaction I would be seeing P. later that day. [With two of the three medications I had previously reacted badly to, it had happened literally within a few hours of taking the first dose]. I also had a doctor’s appointment on Tuesday, and scheduled a ‘just-in-case’ appointment with K., my synagogue social worker who I have been seeing semi-regularly, for Wednesday afternoon.

Monday came round and I took the first dose, which – as this was a high dose treatment – was a good handful of pills, making me feel as if I was actually overdosing on tablets. By the time I was due to see P. – about six hours later – I already knew something wasn’t right. I could feel things firing in my brain, rapid electric sparks in my head, and it was as if I couldn’t keep track of my own thoughts. It was a truly bizarre experience. – Anyone who has ever been seen by the mental health crisis team knows that one of the questions you will be asked during the assessment is ‘Are you having racing thoughts?’. Being prone to deep depression and suicidal ideation rather than mania I have always answered ‘No’ to that question, not really knowing what ‘racing thoughts’ actually were. I’m telling you, by noon that Monday I knew exactly what they were – and it was freaking me out, big time!

So, I had a crazy rambling session with P. that day, very unlike any other session I have ever had. I also spoke to H., my care coordinator, that same afternoon and she sorted out a referral to the crisis resolution team for Wednesday, as it was clear I was not in a good way and would likely need the extra support, particularly over the weekend.

On Tuesday morning I went to see the doctor – an absolutely lovely F2 who I hadn’t met before. By then I had taken the second dose of Prednisolone – more out of a sort of manic compulsion than anything else – and consequently the reaction was getting worse. I had also used a surgical scalpel and cut myself very badly in two places; enough to warrant stitches. The doctor’s reaction was ‘Come off these meds immediately – this is a really serious and abnormal reaction!’.

I explained to her the reason why I was on the treatment in the first place and why I was finding it hard to ‘just stop taking the meds’, and this young doctor was absolutely brilliant. She sat back and listened to me carefully and then took the time to make five or six phone calls – while I was still in the room – to get hold of an ENT registrar to find out what the implications of stopping the treatment would be for my hearing, so that we’d be able to make an informed decision. The ENT registrar told her that as treatment had been delayed by several months already [Urgent NHS referral, remember?] it was unlikely that my hearing would improve, that the specialist who prescribed the steroids probably felt it was worth a shot – even if it was a shot in the dark – because sometimes people do respond, even with delayed treatment. But, the registrar concluded, in light of the extreme reaction I was having it certainly wasn’t worth staying on the meds, as the odds of success were so small.

I felt really reassured in that moment that I wouldn’t be missing out if I ended treatment prematurely, because the odds of any improvement were so small. It made complete sense to stop taking the meds.

But, then I got home, and I was still hyper and there was so much in me saying that firstly I was already dealing with the adverse effects of this medication [the GP had explained that it would more than likely be a few days, maybe even a week, before the chemicals in my body would stop messing with my brain].. and it was only a few more days to go.. and what’s to say that I couldn’t have an equally abnormal positive reaction to these meds..? After all, my body is clearly highly sensitive to small chemical changes..

So, the next morning I took the third dose, against medical advice. This time it wasn’t manic compulsion that made me do it, but that part of me that just needed to hold on to hope, that simply couldn’t give up, even though everyone around me felt this was a very bad decision, indeed.

I spent time in my session with P. that day, exploring why it was so terribly hard for me to stop taking the tablets, even though the rational part of me knew that the chance of a positive outcome was incredibly slim – and that was really helpful, even with the chaos raging in my head.

I also had a good chat with K. that afternoon. She was characteristically open, direct and honest with me both about her anger and her disappointment that I had carried on taking the medication in spite of what the doctor had told me, and in spite of the fact that I had felt completely reassured at that point that I wasn’t missing out. I told her that I would think very carefully about handing the meds in to P. the next day, but I was also clear that I wasn’t prepared to make any definite promises, because I simply didn’t feel that I could. So much of me felt out of control and I just couldn’t say that I’d be able to do that, come morning.

Oddly, the thing that made me realise just how out of control I really was wasn’t the fact that I had cut myself so badly, but the fact that I found myself at a McDonald’s having a Big Mac.. I’ve been a vegetarian for something like twenty years, and I keep sort-of-kosher, so for me to sit down and eat something like that goes against so much of what I believe in. It is something I simply wouldn’t ever do, if I were in control of my actions..

I did end up giving P. the tablets the following day, but not before having taken a fourth dose that morning, this time – again – in a very compulsive manner. There was no reasoning whatsoever, just acting: I simply couldn’t not take them. This made me realise that I really needed to view the tablets in the same way I did my scalpels and cords [all of which I had handed in to P. two days earlier, feeling too out of control to be safe with them]; while I was still having this strange reaction I just couldn’t manage the tablets responsibly.

It took a good while after that final dose before I felt completely back to my normal in-control self, and I carried on working with the crisis resolution team through the weekend and most of the following week, just to be safe.

I am really glad that I had as much support available to me as I did during this time, because it was incredibly frightening to be so out of control. The experience was very different to other times when I have felt out of control. Whilst what came out in the midst of this whole ordeal – feelings, thoughts etc – were things that were almost certainly already brewing inside, it was – at least the way I look at it – triggered by outside factors. And that’s quite a scary thing.

All the very best,

xx

Consequences Of One’s Actions

A lot has been going on in the last few weeks [or is it months?] since my last proper post. There have been some serious ups and downs, and I don’t quite know where to start.. So, I’ll just start with what’s on my mind right in this moment: my hearing. Or, rather, the lack thereof.

I’ve not really written about this before, because up until about a year ago, it’s not really been too much of an issue, or at least it has been an issue I have had the luxury of being able to ignore.

As my long standing friends will know I lost a big chunk of my hearing many many years ago, when I was about twenty. I was doing voluntary work at an orphanage in a village outside a village outside another village, in the Middle Of Nowhere, India. It was Diwali, the Hindu festival of light, and as a special treat for the children we had bought fireworks and penny crackers, which they were allowed to set off. All was going great, big bright smiles all around, lots of happy dancing and singing.

Until one of the kids threw a firecracker up in the air and it exploded right next to my left ear. My whole world went silent in an instant. It was one of the most terrifying experiences of my life, that sudden and complete absence of sound. I remember screaming, but not being able to hear the sound of my own voice.

Over the next hours and days some hearing in my right ear did come back, but the hearing in my left ear was almost entirely gone. I managed to see a doctor when I went into town a few days later. He very carefully examined my ear and hearing and confirmed the damage with a simple “This is not good” and a slow, sad shake of his head.

And that’s pretty much how it’s been until recently. I knew I could probably be helped by wearing a hearing aid, but I simply wasn’t ready for it, and since I was able to use the remaining hearing in my right ear well enough to compensate for the loss in the left, I just left it at that. Something was broken, but not enough to bother fixing it.. There has been a lot of “If you want me to hear you, you’ll need to walk on my right – if you’re only going to talk rubbish, stay on the left” going on over the years, but all in all, through a combination of lip reading, context deduction and plain ol’ guesswork, I’ve been able to fake hearing pretty darn well. It’s amazing how easy it is to just laugh when everyone else laughs at the end of a joke you haven’t even heard, or to cover up giving the wrong answer to a question..

However, a bit over a year ago I started noticing that I was no longer as able to compensate with my ‘good’ ear as I used to be, and – being fifteen odd years older – I decided that it was kind of silly to routinely pretend being able to hear when I couldn’t, and that I should really do something about it. So, I went to have a test.

The results were shocking; not only was the hearing in my left ear really poor, my right ear was also significantly worse than I had thought. I was advised that I was a prime candidate for double hearing aids, and that I should get my GP to sort out a referral [private hearing aids are horrendously expensive].

A number of months later I was finally given an appointment at an NHS hospital. Only by the time I had that second round of hearing tests there had been a distinct further drop in my hearing, particularly in my right ear, and as this wasn’t normal I needed to be seen by an ENT specialist. The audiologist told me that this kind of drop could quite possibly be down to an acoustic neuroma – a fancy way of saying that I might have a brain tumour affecting my hearing. Consequently, an Urgent Referral to an ENT specialist was made. For those of you who don’t know, an Urgent Referral in NHS/ENT terms means ‘probably around three months’. Thus, I spent three months trying to not give myself cancer by worrying about this possible tumour, while not being able to hear what people were saying, since hearing aids can’t be issued while you are still under investigation.

The three months passed and I very nervously went for my appointment, having absolutely no idea what to expect. It turns out that in those three months since my last appointment a second drop in hearing had occurred. More bad news. On some level I kind of knew this, but I had talked myself into believing that the drop was ‘just in my head’, that it was simply down to a higher awareness of my hearing loss, having now stopped pretending to be able to hear when I can’t – but – the audiogram clearly showed that this was a genuine drop, and not something I had imagined.

The ENT specialist sat me down and took an extremely detailed medical history, after which he concluded that it was exceedingly unlikely to be an acoustic neuroma, as only 13 people in 1,000,000 have them, and that my sudden sensorineural hearing loss [SSNHL] was far more likely to have been caused by my two most recent overdoses, as the drops follow that pattern precisely, and the chemical I had taken is well known to cause hearing loss in those who survive the overdose.

Needless to say, to me, this was quite a powerful emotional bombshell. I had been medically cleared after those overdoses and there had seemed to be no lasting damage.. But, clearly, this was not so, and I was now seeing the consequences of my actions in black and white.

The ENT person said that it was possible that the SSNHL might not be permanent, and that a short, high dose, course of steroids might jump start some hearing cells in my ear, partially reversing some of the loss. Ideally this kind of treatment is given within days of the hearing loss occurring, rather than months later, so it was in no way certain that the treatment would work, but he felt that it was definitely worth giving it a go, because whilst there wasn’t really anything to be done about the hearing loss caused by the initial blast trauma, there was still a slim chance that the more recent drop could be helped. I’d still need hearing aids, he told me, but I might be able to avoid cochlear implants further down the line.

I’m going to end this update here, simply because this is already a massively long post, but, I will write more about what happened with the steroid treatment and my hearing in the next few days.

I feel very aware that I haven’t really talked about the emotional impact of not being able to hear, or the fact that part of my hearing loss may have been caused by my own actions, and I hope that I will be able to touch more on that in the second part of this saga, because – of course – this is a big deal.

Until then, do be kind to your Selfs.

xx

PS. I’ve yet to sort my PC out, so I do apologise if the formatting of this post is a bit rubbish; it was all typed on an iDevice, and that’s a lot fiddlier than one might imagine..

A Little Bit Of Therapy Related Art

A little bit of art until I find the energy to sort my PC out so I can post a real update..

Sky Red

Sky Red

Dissociation

Dissociation

Painting My Feelings When Words Won't Suffice

Painting My Feelings When Words Won’t Suffice

I often use art as a tool for expressing myself. Especially when it comes to things that can’t ever be fully expressed, because I don’t fully understand it myself. To me, colours, textures, light and shadows evoke their own feelings and I try to use that in my art.

The bottom one I used in therapy the other day. I had been talking about the court case against my brother and had a lot of feelings floating around inside of me, but lacked the words to adequately describe them to P. [or even to myself], so when I got home I made that painting and brought it with me to session the next day. Together we managed to find some words to go with it.

xx

Starting Over After A Break

               *

“Lily, oh Lily – I don’t feel safe
I feel that life has blown a great big hole through me.”
And she said,
“Child, you must protect yourself,
You can protect yourself;
I’ll show you how with fire..”

                           [from ‘Lily’ by Kate Bush ©1993]

 

 

 

I have had my first two post-summer break therapy sessions now. And it has felt, well.. strange. Both on Monday and today I found myself uncharacteristically tongue-tied at the beginning of session. [I am often silent during the first few minutes of a session, but I don’t often feel that I can’t speak]. There were plenty of thoughts and feelings buzzing around, but I just didn’t seem able to catch hold of any of them to translate into words.

In the very first session I was initially completely overwhelmed by how powerful the relief of seeing P. was. I hadn’t expected to have quite such a strong emotional response. I could almost physically feel Little S. doing backflips in sheer joy at the sight of P. in her chair. Back where she belongs.

And, at the same time, there was a real urge to withdraw and protect myself from anything and anyone who wasn’t me. To go to my island, the one that is so tiny that it only has room for me. The one where I feel safe in the knowledge that no one else can get to me.

See, that’s the funny thing about Little S.; as happy as she was to see P., – and she was very happy – she is also naturally suspicious of others. Just because P. was back and everything seemed alright, it didn’t necessarily mean that Little S. would readily take that at face value. So, she went from being absolutely delighted to have P. back to ‘You disappeared on me, so I’m not quite ready to trust you yet’ in seconds flat. You see, Little S. is – as I explained to P. in today’s session – a lot like Little My of the Moomin Valley; there is only ever enough space for one feeling at a time and she can go from one to another in no time at all. One second ‘overjoyed that P. was back’, and then – boom – ‘suspicious that she might do another disappearing act’.

 

- Little My - "If you're angry you're angry." Little My reasoned, peeling her potato with her teeth. "You're supposed to be angry from time to time. Every little creature has that right."


“If you’re angry you’re angry,” reasoned Little My, peeling her potato with her teeth.
“You’re supposed to be angry from time to time. Every little creature has that right.”
[From Moominpappa At Sea by Tove Jansson ©1965]

 

P. suggested that maybe Little S. is quite angry with her – or even really angry with her– for leaving her to fend for herself while she went on a nice long break. As soon as P. said that Little S. – sensing danger at being called on her negative feelings – had to go into hiding, and Adult Me was left to explain that Little S. wasn’t quite ready to deal with those feelings yet, ["Little S. has left the building"] even if P.’s guess was probably spot on and Adult Me would have liked to have been able to talk about it, together with Little S.

At the beginning of today’s session, while still in Unable To Speak-mode, I became aware that there was a song playing in my head. It seemed unlikely to be chance that that particular song had decided to play, so I shared a few somewhat random lines from it with P.: “Child, take what I say with a pinch of salt, and protect yourself with fire”. At the time I felt very aware that I was leaving out two lines about feeling unsafe and being afraid, but as I am writing this now, I am thinking that maybe that’s not the end of the world? I have another session tomorrow, and if I want to, I can mention making that choice – so we can look at the reasons for consciously leaving those oh-so-revealing lines out, or I can leave it as it is, because even though I missed out parts of the lyrics, we kind of managed to touch on the themes of not feeling safe anyway.

We also spoke about feeling unsure if this need to protect myself through withdrawing [from P.] is something I – or at least Little S. – genuinely needs to do in order to cope, or if it is something I now do per automatik, unquestioningly and without thinking, because it is what I have ‘always’ done.

I suppose that this is a constant battle for me; striking the right balance between being mindful of Little S.’s needs, and challenging her to take tiny steps forward.. It is also, admittedly, a struggle at times to manage Adult Me’s frustration with the amount of time Little S. needs to take any little steps at all. I often find myself having to repeat the mantra that ‘baby steps are also steps’ to Adult Me, because if she had her way, she could quite easily race ahead at a pace neither Little S. nor Adult Me is ready to cope with..

 

All the very best,

xx

 

Lily from the album The Red Shoes. This video features in Bush's short film The Line, The cross and The Curve.
Kate Bush © 1993

Hearing the Littles – A Therapy Break Update

Våga Lita - Dare Trust A reminder written on my arm before going into a therapy session shortly before The Break

Våga Lita – Dare Trust
A reminder written on my arm before going into a therapy session shortly before The Break

It is far too early on a Sunday morning for me, or indeed anyone, to be awake. But, I am. Anxiety is stretching my nerves to the point of breaking, and I have been unable to sleep for about forty hours. Insomnia isn’t out of the norm for me; it is part of my pattern. But the anxiety is. Or, at least, the level of anxiety. I can feel the extreme imbalance of the chemicals surging through my system, splashing around, crashing into each other and the rocky shores of my insides that have until now been unknown to me. The inner landscape of my body is soaked, drenched, in acidic anxiety, and I can’t think of how to rid myself of it, how to alkalise.

I know that I can and will get through this. I have survived it before, and I will again. It is just that the strength of emotions have taken me by surprise. Yes, I was nervous about this upcoming break in therapy for weeks before it started, but I thought that perhaps this time might be different, because, in contrast to many other breaks, I – we – P. and I, had spent so much time talking about it, preparing for it, putting in place things to make it more manageable. And I, foolishly it seems now, thought that that in itself might dull the sharpness of my feelings. But it doesn’t.

I miss P. terribly, and even though I have talked to my friends about it, and many of them have responded with empathy – more so than in the past, it seems – I am still left feeling that no one really understands the depth of my emotions. Or maybe it is a sense that others expect Adult Me – the intellectualising, reasoning, part of me – to handle this, to take charge and make it all OK, for all of the different parts inside of me. Truth be told, I think that even I expect her to.

But, what happens during a therapy break – a break from my pseudo parent – is that Little S. – not Adult Me – is the one who is reacting to this separation. Adult Me can watch, but can do nothing about that, because Adult Me wasn’t there when the fear of separation and abandonment, was born. Adult Me hadn’t yet been formed when Little S. – or even before then – tiny Baby S. were dealing with life in a world where there simply was no stability, where her parents gave her up and left her to fend for herself, completely void of tools with which to do so. Because of this, the reassurance Adult Me is continually trying to offer rings hollow to Baby S., in exactly the same way reassurance from anybody else does. Adult Me may be one of many parts that forms the whole of me, but she wasn’t there when it happened, and as far as the Littles are concerned, she doesn’t get it any more than my incredibly kind and well-meaning friends do. Not emotionally. And Little and Baby feel just as nakedly defenceless as they did back then.

Of course Adult Me has acquired lots of tools over the years to deal with situations like these. And during normal, daytime, hours, she makes the most of those tools and is often successful in temporarily alleviating much of the fear and anxiety. But when the rest of the world goes to sleep, and Adult Me is exhausted from a day of constantly trying to soothe those Little parts, when she needs a break to stock up on supplies, that’s when the primal scream of Baby S. sounds the loudest, deafening all intellectualisation and reasoning.

Baby S. was about six months old when she was adopted, when she came to live with her new parents in Sweden. No one knows, and Baby S. can’t remember, what happened in the six months before then. But the emotional echoes of the feelings born in those months still bounce between the walls of her outer shell, and when something like this – a separation, a perceived abandonment from a care giver – happens, those echoes amplify and drown out everything else. The echoes are always there, even in peacetime, noticeable in the fear of forming attachments with others and the difficulty in trusting, but when an actual separation happens something explodes in her, because just as Baby S. couldn’t know at the time that that abandonment would be temporary, she is now – still – blind to this fact. Baby S. only knows the here and now, isn’t able to look to the future, so when Adult Me, in sheer exhaustion, takes a break from reassuring Baby S., Baby S. thinks that this will last forever.

I wrote an email to P. a few weeks prior to her going on her summer break, about the whole How to cope with your therapist abandoning you for a minor eternity-issue, and as I am writing this now, it strikes me that that is exactly what I am dealing with: a minor eternity. It is minor in the eyes of the world, even in Adult Me’s eyes, but to Baby S. and Little S. – both of them too young to understand the concept of weeks or days or even minutes – it is an Eternity. And eternities have no foreseeable end.

As I wrote at the beginning, I will get through this separation, just as I have got through separations in the past. But in order to help Baby S. and Little S. I need to remind Adult Me to deal with them gently and patiently in the understanding that they have not yet got as far in the healing process as she has. They will get there eventually, but it will take more than the survival of a few therapy breaks for them to feel safe enough to integrate fully, to get to a place where The Whole can begin to work as a single entity, rather than as a multitude of frightened independent parts.

So, I say to myself, as much as I do to you:
be kind to your Selves.

 

Much love,

xx

 

The Beginning Of A Break

Had my final pre-therapy break session yesterday, and it was hard. Or, maybe hard isn’t the right word? It was emotional. Not emotional as in floods-of-tears-streaming-down-my-face-fifty-minutes-straight, but it certainly stirred things up inside of me in a big way.

So, P. and I spent most of the session talking about all the different feelings this break is bringing up for me. How it makes me feel like the abandoned, forgotten baby I once was, the distant echoes from when I was tiny and was given up by my birthmother, and how – even though I have no conscious memory of it – that must have had a profound effect on me. I also retold the story that my mother [technically adoptive mother, but it’s not a term I ever use; she’s just my mother] has told me so many times: that about two or three weeks after I was adopted my mother was downstairs doing something with my brothers, and she completely forgot about me. Not as in ‘she forgot that I was upstairs in the baby swing’, but as in ‘she utterly and completely forgot that I even existed’. My mother tells this story as a bit of an amusing anecdote, but of course, there isn’t really anything very much fun about it at all: I had already been given up once and then only a few weeks later my new mother also forgot that she had a baby to care for..

We also talked about how I simultaneously fear it will be an incredibly difficult break and that it won’t be difficult at all. That it, paradoxically, is easier to deal with the idea of finding this break an immense struggle, than to cope with the idea that it mightn’t affect me much at all. Because, if it isn’t difficult, if it doesn’t affect me, what does that say about P.’s and my relationship? Of course, it could just mean that I have simply developed better ways of self-soothing than during previous therapy breaks, but, knowing myself, I am far more likely to jump with instant certainty to the conclusion that it must be because P.’s and my relationship isn’t really all that special after all etc etc etc.

Last week P. gave me a few suggestions of things we could do to make me feel less abandoned during this break, to allow me to hold on to her even when I’m not actually seeing her. One of her suggestions was to give me a recording of her voice for me to listen to, if she started feeling too distant in my mind. I rejected that idea right away, stating that it wouldn’t be all that useful, considering how poor my hearing is, all the while knowing that that wasn’t the reason at all, but rather that something about having a voice recording felt too close and too scary for me to cope with. Another suggestion, in a similar vein, was that perhaps it would be helpful if she were to give me a photograph of herself to look at. This led to me coming clean and admitting that I already have a picture of her, and that – yes – I do find it very helpful to look at it. P. said that this photo would be different, though, because this would be a photo she had given me, which I agreed it would be, but that I needed to think about it.

What I failed to explain to her at the time, and which later came back to haunt me in the form of a number of sleepless nights, was that I said nothing about why [how?] I had a picture of her. Eventually, it got to me so much that I had to write her an email to explain that it wasn’t quite as creepy-stalkerlike as it may seem: because of the prosopagnosia I have taken to doing a quick search engine/social media scan for a pic to add to any new contact I put in my address book, including the guy who comes to fix the boiler. Just for clarity: I don’t think there is anything inherently wrong in having your therapist’s photo; most clients have a very natural, healthy curiosity about their therapist, and googling someone is hardly the crime of the century – it was more the fact that I hadn’t said anything about it to P. that was bothering me, because it filled me with anxiety that she might think I was exhibiting creepy stalkerlike behaviour. Unfortunately, the very sweet email she wrote back to reassure me that this wasn’t the case, that she didn’t feel it was either creepy or stalkerlike, for some reason didn’t make it through to my inbox, and consequently my anxiety was quadrupled over the next two days. But, we managed to talk all of that through later.

In the end I did accept P.’s offer of giving me a photograph. The actual photo is one that my prosopagnostic brain has trouble deciphering as being of her – there is something about the fact that she isn’t smiling with her eyes – as she so often does in session – that makes it hard for me to understand that it is really her in the photo, but it still means a lot to me having it. I treasure it in the same way that I might treasure a handwritten note from her, precisely because it is from her. I also showed P. the picture I already had of her, and I think she understood why that is a picture I find much easier to connect emotionally with – because in that photo she seems very relaxed and is indeed ‘smiling with her eyes.’

The final idea of how to cope with this separation was one I came up with. I had been thinking about what exactly all of those fears inside of me really are, and what different ways we had worked out to deal with each one of them, and I realised that one of my biggest fears – the one about being forgotten and left behind – could also be dealt with, with a photo. This time, I suggested to P. that maybe I could send her a photo, of me, because even though Adult Me intellectually knows that I won’t disappear from P.’s memory the second I am out of sight, her having something of me with her would make Little S. feel a lot better. [For long term followers, this idea was a modified version of the rubber duck I gave A. in our very last session together.]

So, all in all, that last pre-break session was a good one. I felt quite overwhelmed by P. saying so many kind things to me, particularly when she said that her having my photo meant that she could take me with her on her leave.. But, as I also explained to her, it was good overwhelming, not bad..

Right at the very end of the session P. asked one last time if there was anything else she could do for me, to which I said: “Just make sure that you DO come back”.

To which she replied that she wanted the exact same thing from me.

 

xx

Reconnecting

I’ve been writing this update in my head for about a month, only I’ve not got down to typing it up. I am struggling to remember where I was at, emotionally, when I posted my last update, but I know that it wasn’t a very nice place.

Things sort of spun out of control for a bit. I went into the worst period of constant flashbacks I have ever experienced and ended up, once again, at Drayton Park. The whole first two weeks of staying there I more or less only ventured outside of my room to see P. for therapy. I didn’t eat, didn’t sleep and didn’t socialise with any of the other women who were staying there, so this stay was very different to many of my previous stays at Drayton Park. I simply found it too much to be around others when I was being thrust back into the past again and again and again, in an endless waking nightmare of relentless flashbacks.

Something very serious happened while I was at the crisis house, something I still don’t feel I have properly processed or understood, and I may come back to that another time, but for the time being I won’t go into it. I need more time to think about it.

In my third and final week at Drayton Park the frequency of flashbacks began to decrease and I was able to be my usual self a bit more. I had a few really good conversations with some of the other women staying at the project, feeling privileged to be allowed hear their stories and to get to know them a little. It is always a very special thing when someone decides to trust you enough to share of themselves.

I saw D., my ex-counsellor, in passing a few times during my stay [since she is based at Drayton Park one day a week] and we had some good, honest banter over lunch one day. In fact, it must have been really good, even to others listening in, because after D. left one of the residents asked me if D. was my mother, because we had such a ‘natural and easy way with one another’. How anyone could associate ‘natural and easy’ with a mother-daughter relationship is beyond me, it certainly doesn’t fit with any experience of a mother-daughter relationship I’ve ever had, but it was a very nice thing to hear, nonetheless.

Good banter aside, as D. and I were ending one of our little mini-conversations she told me to take good care of myself. Force of habit I shot a semi-automatic “I always do” coupled with a bright smile in her direction. Only, this being D. on the receiving end, she didn’t just let that statement slide, but immediately lobbed a “No, you don’t” back at me. She then paused, looked me right in the eye and slowly repeated “No. You don’t.” And there was so much feeling in those words. There was an unspoken – but clearly received – message of ‘I so wish that you did take good care of yourself. Because you really, really matter.’  And that meant a lot to me.

 

*

 

It has now been four weeks since I left Drayton Park, and there have been both ups and downs. The frequency of flashbacks seems to be back to normal, more or less. It is in no way easy to deal with the flashbacks, regardless of the less intense frequency, but it is a lot better than what it was. As I explained to a friend of mine; it’s a bit like my breathing. While my breathing is never really all that good, immediately after a bad asthma attack the ‘not so good’ still feels like a relief, by comparison.

Therapy with P. is going well and we are continuing to build our relationship, making sure to take plenty of time to do so, so that all of the different parts of me – especially Little S., who is so terribly afraid of anything that resembles trust and care and attachment – feels both seen and heard. Little S. gets scared, because she learned very early on that all of those things will inevitably lead to pain and hurt, and as much as Adult Me wants to challenge that fear, wants to show her that this relationship with P. can be safe and won’t necessarily lead to pain, it takes time and patience to get there. It takes a lot of work to truly alleviate fears that are that deeply rooted.

We are coming up to our first therapy summer break by the end of this week and as a consequence anxiety has been running high both for Little S. and for Adult Me. Regular readers of this blog will know that psychotherapy breaks is a topic I have written about a lot over the years, because it brings to the fore all of my fears about being abandoned and forgotten. It is also one of those things that people who haven’t been in therapy never seem to fully understand or appreciate. And, to me, that is also part of what makes breaks in therapy difficult; the sense that others don’t understand how hard they really are. Whenever I mention to ‘non-therapy’ friends that I feel really anxious about an upcoming break, I always get the feeling that they are thinking that I am worrying over nothing. And if I, during the actual break, say something along the lines of finding it hard that my therapist is away, the immediate response is invariably ‘When will she be back?’ followed by an equally predictable ‘Well, it’s only X weeks left’. This, of course, feels terribly invalidating, since a therapy break isn’t really about length of time at all, but about strength of emotions and how to cope with them in the absence of a safe place to explore them.

P. and I have been talking about this upcoming break and how I will be able to manage while she is away. P. had a few different suggestions of things we could do and I felt incredibly touched by them. I know that it probably seems a little silly, but it had never even entered my mind that she would have spent time thinking of ways to make this easier. I am so used to doing all my thinking and coping on my own, and I feel simultaneously grateful and overwhelmed by the care she has shown me leading up to this break.

 

I think I will end this update here.
Hopefully it won’t be quite so long before I post another one.
[I always seem to be saying that, these days].

Just before I leave you for this time: Thank you all so very much for the many moving and kind words posted in the form of comments and emails during this past blog hiatus. I am sorry that I haven’t been able to respond to all of you, but please know that I do read every single email and comment, and they really do mean a huge deal to me.

Namaste.

 

xx

 

 

 

Life’s A Dance You Learn As You Go

To me, writing is like breathing; a necessity for life. So, the fact that it has taken me this long to feel able to update my blog may be an indication of the degree of difficulty I have had in holding on to life itself. For the past several months the wish to just let go, to allow myself the luxury of that Final Rest, has been a minute-to-minute struggle. It hasn’t been a crisis as such – at least not in my eyes – and there has been a very definitive lack of urgency about it all. No mad dash towards the Ultimate Finish Line, just a steady step by step journey towards a glittering End ahead of me. It stems from walking around with a soul that is simply so tired, so emotionally exhausted that it naturally gravitates away from life. The strings I have used so many times in the past to pull myself away from the edge are either broken or have disappeared altogether.

I wrote in my last post about having a flat battery and a faulty charger, and that, to a large degree, is still how I feel. Like I am running on empty.

But I am still here, and not only that, I am here through my own very conscious decision to be so. It isn’t a case of Death all of a sudden having lost its vice like grip on me; I can still feel those cold skeletal fingers around my ankle.. but, I can also feel my other foot – the one Death has yet to reach, planted firmly, barefoot, on the soft grass. It is a defiant “I decide when I step across that line, not you.”

I have always felt that ending one’s life ought to be a decision, not impulsive acting out because things are so unbearably difficult in that one particular moment. I wouldn’t ever want my loved ones to be left wondering What if she had only just got through this crisis? Would she still have made the same choice?

I am not so naïve as to think that a ‘painless suicide’ exists – suicide always comes with pain in its wake – and I accept that whatever the intention, there will always, inevitably, be question marks forming for those left behind, but I would like to have done my best to minimise the suffering. I would like them to know that this was what I really wanted. And this is one of the reasons why I am still here today. Because I will not let go while I am in the middle of what is a very difficult period. You simply cannot make a rational, reasoned decision in the midst of chaos.

In the last week I have yet again entered one of those nightmarish periods where one flashback follows the next – ceaselessly, relentlessly. It is an incredibly painful place to exist within, a place where it feels as if nothing is my own, where I keep being pulled under the surface again and again and again, with hardly any time above water to catch my breath. And even though I know that this won’t last forever, it certainly feels endless.

In session today, P. revived the metaphor I used before of jumping into the pool, not knowing whether or not I would be able to swim, and she reiterated how it is her job to be the life guard. She said that we need to work together to create metaphorical armbands, to help me stay above water. My immediate response to that was that I taught myself to swim, without water wings, thank-you-very-much, that, in fact, I actually learned to swim under water, before I figured out how to do it with my head held above the surface.

I have often said that even though I generally learn new things quickly, I am an emotionally slow learner – but now I am sitting here, thinking that maybe it is really that I am a slow unlearner. In the months since I started seeing P. I have struggled with echoes of past relationships, with trusting P. to know her own limitations and have automatically and without thinking taken on sole responsibility for managing our relationship. I can see where this need to be in charge comes from, and I know what the original sources of those echoes are.. What I find difficult to do, however, is to make a different choice this time around. While I have needed to be solitarily strong and in control in the past, this may not still be necessary. It makes me think of a ’90s country song that goes “life’s a dance you learn as you go, sometimes you lead, sometimes you follow”..

You need to have that balance in a relationship; to sometimes lead and sometimes follow. I am pretty good at the first, but markedly less so when it comes to the latter. And maybe, just maybe, it isn’t such a bad thing to allow someone else to lead every once in a while..?

 

xx

 

Life’s a dance you learn as you go

Sometimes you lead

Sometimes you follow

Don’t worry about what you don’t know

Life’s a dance you learn as you go

 

Life’s A Dance © 1992 Shamblin & Seskin

A Flat Battery, A Broken Charger

You know that mode where you get so overwhelmed by things that your whole system simply shuts down? That state where everything tangles and intertwines into an almighty tied up, knotty, gnarly mess and you can’t find an end to start, even though you are staring at a million and one loose ends [either one of which would do], but you just can’t seem to be able to pick one up? That is the mode I have been in lately.

Today I finally managed to pick one of those loose ends up: writing something about what has been going on. It’s not the one that should be at the top of my list, or even in the top ten, but it is the first one I have felt able to pick up in a long time, and starting somewhere, I suppose, is better than not starting at all. Perhaps.

My sessions with P. have been progressing in a squiggly upward curve. I have challenged myself to share things that I would never have thought possible, and I have very very cautiously began to accept – maybe even trust – our emerging relationship and the terrifying intimacy that comes with it. There is something very gentle about the way P. works with me. I don’t mean that she takes things unduly slowly or that she doesn’t challenge me, because she does, but there is a lot of focus on doing things in such a way that there is always time to experience the emotional impact of what we are talking about. There is space to explore both how it is for me and also, crucially, how it is for her to enter these dangerous minefields, where each tiny step can so easily explode into painful memories or full-blown flashbacks. I think [even though something inside of me feels afraid to put it in writing, lest I jinx something] that I am in fact beginning to feel safe with P., and it is such a deliciously unusual feeling, so delicate and precious, that I find myself softening my grip on Control to ensure that I don’t accidentally break it.

Some weeks ago I said to P. that beginning this journey felt like standing on the very edge of a pool knowing that I need to dive in, but feeling uncertain whether or not I would be able to keep myself from drowning once I hit the water. So, P. looked right at me, in that way she does when she wants me to really listen, to truly hear her, and gently suggested that maybe I could try to remind myself that I am not alone and that she is actually quite a good life guard.
P. often talks of how desperately Little S. – my inner child, the child me – needed to be seen and heard and cared for, and how this, our relationship, is a place where that can happen, where it is safe to let Little S. out.

So, I have been pushing on, have been trying really hard. Yesterday, I even brought Doth to my session, because I knew it would be an immensely difficult one, and I thought having her in my arms might make it a little easier.

But at the same time, there is this other part of me that can’t help but to ask why I am even doing this. What the point of it is.. Because lately I am struggling to see one.

You see, all my life – even while the abuse was still going on – the one thing that always kept me going, that got me through, was the thought that one day I would have children of my own. It made it worth soldiering on, made it worth living through the abuse. Later on, it made it possible to cope with the daily onslaught of flashbacks, made it worth going through the often very painful process of being in therapy. All because one day I was going to be somebody’s parent. That thought, that one day I was going to be somebody’s parent, is what has always kept my heart beating; as noisy as the difficulties and struggles have been at times, that thought always beat louder. One day I was going to be somebody’s parent.

Only, for the last five years I have been trying for a child, have discovered that I have fertility issues, have had fertility treatment, and have had it fail. And as much as I have been trying to fight it, slowly the knowledge that this – my one dream, the one thing that has always kept me going – has dissolved, has died and no longer exists, has truly sunk in.

Please, refrain from telling me that It may still happen, you can’t know that it won’t or Have you thought about adoption? or Lots of people have no children and still have fulfilling lives. Yes, I have thought about all of those things, of course I have, I have had years to think about it, but the bottom line is that the one thing that I have ever wanted for myself is something that I will never have. And the one thing that has made it worth working so hard all these years to keep my head above water is no longer there. And rather than well-meaning, but ultimately empty, encouragement, I need space to mourn. Because, for me, this is a loss greater than any other. It is the loss of hope.

The motivation for going through therapy, for wanting to get to a place where I am as whole as I can be, has always been because one day I was going to be somebody’s parent. I wanted to get through as much of the difficulties as possible, for the sake of my future child. But, if that is never going to happen, then, what is the point?

I know I am supposed to want to do it for me, but that has just never felt important enough. I have never been important enough to me. And, yes, maybe that can change. After all, that is part of what P. is trying to do with me. It is just that all of my energy is draining from my soul and the hope that once helped recharge my battery isn’t there anymore, and soon I will be running flat.

So, do forgive me if I have been a poor and absent friend lately. I really am truly sorry that I haven’t been able to be there for you in the way that you deserve. I am so very blessed to have people who care so deeply about me and I am incredibly thankful for having you all in my life. But, right now, I suppose I need to preserve whatever energy I have left in my tank, to fuel whatever it is that it takes to be me.

xx

 

*

The Greatest Joy & The Biggest Sorrow

*

Daring To Trust

 

Today I did something that scared me, something that made me feel, something that needed me to be braver than I have ever been before. I shared something that I had never ever shared with anyone before.

*

I have now been seeing P. for just over a month. Ten sessions to be precise. And it has been, well, quite a big change for me. It is hard to not constantly compare the work I am doing with her to the work I did with A. It isn’t so much that I keep thinking that one is decidedly better than the other, but I am struck, over and over, by how different it is to be in therapy with P. The relationship we are tentatively building has a whole different feel to it, there is an added dimension to it, a quality that is hard to paint in words, but which is so real I can almost feel it physically.

That said, I miss A. I do. I really miss her. I miss the way I would spend time in session self-analysing and contemplating different angles to things, turning things round and round and having the luxury of going through all the ins and outs of my thoughts, with A. every now and then reflecting back to me what she heard me say.

I find myself, sometimes, making statements that I feel would have fitted well in A.’s therapy room, but which don’t quite work in the space I share with P. I find that doing my ‘getting into therapy mode’ routine, which I have been doing for nearly five years with A., feels awkward and out of place with P. I still do it, because it is simply the way I kick into gear, but I always feel very aware that P. is there, waiting for me to look at her and greet her properly.

So, there’s a lot to get used to. I find it so scary, the way P. meets me at the door, always with a big, warm and welcoming smile, and the way she seeks to make eye contact with me. I find her invitation to form a real relationship with her absolutely terrifying. There are alarm bells going off all over the place, simply because they have been tuned to mistrust that kind of openness and warmth, has been trained to automatically look for the ulterior motive behind any random act of kindness.

But, I am determined to not allow myself to use that fear as an excuse not to dig deeper. I am determined to find a way to ‘dare to trust’, to challenge my own hardwired concept of the world, of others being out to cause me harm. So, I’ve been pushing on with P. I’ve used my sessions to talk and talk and talk and talk about this fear of attaching, this extreme inability to trust – I’ve talked very openly about it all and she, in turn, has responded to it. And I think that that is where some of the healing may lay; in having those fears heard, having that reluctance be understood and accepted. Because – paradoxically – that is what may ultimately allow me to let my guard down, to allow P. in for real.

And today I took a leap of faith. I brought my journal with me, and I shared a drawing I made this morning of something that happened to me, something I had relived in the form of a flashback earlier today, and which I have never ever shared with anyone before.

It was incredibly scary to do, and before I did it, before I even opened up my journal, we spent time talking about what I was feeling, what the fear really was. I explained that there was something about P.’s presence that made me feel more scared than I would be, if I were on my own with the drawing. That something about her being there made me feel more exposed, more vulnerable, because I didn’t know how I would react to looking at the drawing in front of her, and I also didn’t know how she would react. The metaphor I used to explain it to P. was that it’s like standing in front of the mirror, naked, and then doing the same thing, but with someone next to you. The first is hard enough to do, the second all the more frightening.

At first I just sat with the journal in my lap, looking at the drawing I had made, without sharing it with P. Just to see what that would feel like, to test the waters. I found it difficult, had to actually use my hand to cover up the parts of my drawing that felt too difficult to look at. And then, in the middle of doing this – in the middle of shielding myself from my own drawing – it occurred to me that I didn’t need to be the one who was stuck with the drawing. I didn’t need to shield myself from it. I could give it to P., and she could protect me from the full force of the raw horror that the drawing contained. So, I handed it over to her, barely daring to look at her.

But I did. Look at her. And, yes, there was a reaction to what I had drawn, an obvious emotional response to what she was seeing splashed across her face, and it made me feel very afraid, anxious that maybe I had pushed her too hard, too soon. But then P. spoke, first about how what I had shared in the drawing was something no child should have to experience, and later, about how she felt about me having shared it with her. And it made me feel better.

In the session before this one, I also shared something, in words rather than through a drawing that time, and towards the end of the session P. asked me how I felt about what I had shared. So I talked about it. And then – the thing that made me really feel that there might be a possibility that I could trust her to take good care of me – she asked if maybe I needed to also know how she was feeling, having listened to me. So, I nodded and said that I thought that would be good, feeling so immensely grateful that she had understood how enormous my fear of breaking others with my story is.

And that – her honesty in sharing exactly how listening to me affected her – is what made it possible for me to take this huge step in today’s session. Because, something about that – about P. not holding back on her own response, is what makes me feel safe, makes me feel that she knows her own limitations, and that – because of this – she wouldn’t allow either one of us to go further than we could cope with.

xx

“It’s time we made a place
Where people’s souls may be seen and made safe

Be careful with each other
These fragile flames..
For innocence can’t be lost
It just needs to be maintained..”

JK

 

Innocence Maintained  © 1998 Jewel Kilcher