The March Post

To say that this hasn’t been my favourite month ever would be a grave understatement; March has been seriously rough. But, then again, I always knew that part of this particular month would be a real challenge, as this happens to be the month in which one of my abusers’ birthdays falls, something which is always a big trigger for me. A truly awful day with masses and masses of flashbacks.

On top of that, I was sent one of those dreaded brown envelopes from the DWP that I mentioned in last month’s post, one which contained a form for me to fill out, relating to benefits. This is something that always sends me into a complete tailspin; the anxiety that these forms provoke is enormous, because they force me to have to think about all the things I can’t do, leaving me feeling like an utterly useless human being. Even at the best of times I find it hard to think myself worthy of any form of financial support (even though, in healthier times, I used to work crazy hours, and paid equally crazy amounts of income tax, earning national insurance aplenty) – but when I am already feeling low – well, those DWP forms seem to be designed to give one the experience of being kicked while already being on the ground..

I am very fortunate, I have a therapist, a care coordinator and a social worker who are all more than happy to help me with these forms and support me through the emotional turmoil they cause, but even so, my risk level increases incrementally with every page of questions on those forms. I spent a session with my care coordinator, filling out as much of it as possible, but even though – in all honesty – she did most of it, and even wrote on the form for the DWP to contact her if there were any questions – I was overcome with horrible thoughts of how the people at the DWP would rather I kill myself, than having to keep paying out money to me. Of course, the rational part of me understands that absolutely nothing about these forms is personal – that lots and lots of people are sent (read: tormented by) them every single day – they still have the power to reduce me to one giant suicidal self-harming mess. In the month and a half I needed to fill out that ruddy form, I lost count of the number of times I took it out – fully intending to manage at least a couple of questions that day – only to have to put it away again, as my urges to self-harm got too strong.

So, this, in combination with my abuser’s birthday, meant that I desperately needed the support of the crisis resolution team. I was having such strong urges to end my life – even though parts of me really wanted to live – that I was struggling to keep my Self safe from me. And, even though I was reluctant to work with them to start with, I know that the extra support that they offered this time around, is what kept me safe, kept me alive.

So, no, March 2018 hasn’t been a great one.
But, hopefully, April will treat me with the kindness I deserve.

xx

The January Post, or, ‘Hello I’m Still Alive’

Why oh why is it so darn hard to sit down and write updates for this blog? I have a million and three ideas flying around in my head at any given moment for things I’d like to write about, posts I’d like to upload – in fact one of them has been mentally written in my head since October last year [Harry Potter and The Mental Health Issue], but I’ve just not been able to make myself sit down and focus for long enough to actually write and arrange things into a cyber publishable format.

I suppose that part of the issue lies in the very nature of this blog – it’s not just about psychotherapy and mental health in general, it’s about my mental health, my journey. It’s about the PTSD, the depression, the suicidal ideation I struggle with, all of which severely impact my ability to focus, to knuckle down and just do things. Even when I really really want to write a post, when I am sitting there with an absolutely brilliant idea for a post, I often simply can’t write it.

In the last few years, because I’ve struggled so much with my mental health and the aforementioned difficulty in being able to concentrate I’ve had to make a switch from writing – something I have been doing my whole entire life in order to make sense of myself and my world – to drawing and painting. For years and years writing was What I Did to express myself, to explore what was going on, to give my imagination and creativity a chance to run wild. And then, somewhat suddenly, with the entrance of PTSD in my life, that was no longer an outlet I could count on. It’s hellahard working on a book, or even just part of a dialogue when you are constantly interrupted by traumatic memories in the form of PTSD flashbacks. So, I had to find another medium, one that wasn’t quite so badly affected by interruptions as writing is, and the medium that came to me most naturally, was art. So, that’s what I’ve been doing: I’ve been art-ing. Sometimes alone, sometimes with friends, I’ve been art-ing and art-ing and art-ing. Some of the drawings or paintings I’ve incorporated into random posts on this very blog, but for the most part I have been posting privately to friends and family on closed[-ish] social media. It was only in October last year that I finally got around to starting a public Instagram account. Shameless plug: If anyone is interested you can find me here. I’d love to have another follower or two. [SPOILER ALERT: the drawings that were supposed to go with that blessed Harry Potter post are on there].

One final reason [read: Exceedingly Lame Excuse] for my severely dwindling number of posts in the last few years is the very fact that I’m in therapy. I see the Greatest Therapist In The Known Universe [sorry you missed out, folks!] three times a week. On top of that I see my care coordinator every three weeks and my social worker about as often. Plus, I am blessed with the most amazing, insightful and supportive friends in the world. So, between the professionals [Team Scout, as I like to call them] and my friends I do a lot of talking and reflecting on what is going on for me. In fact, one of my sisters recently raised a concern that I wasn’t talking to her and my other sister about how I am doing. She was worried that maybe I was either trying to protect them, or that I somehow didn’t feel ‘allowed’ to tell them about the more difficult aspects of my life, when in reality it’s just that I’ve already got plenty of space to let the difficult feelings out. It’s not about wanting to – or feeling that I have to – shut anyone out, it’s just that sometimes – even when I’m really really struggling – I get a bit talked out. I’ve filled my need for expressing myself, I have felt heard and seen and cared for – so by the time I get to talk to my sisters I’m ready to just have a laugh. And, I think something similar has been going on with this blog.

You know how I said “one final reason” in the paragraph above, as if it was going to be the last reason given..? Well, if I’m honest with myself, there is one more very obvious reason for why you, my lovely lovely readers, have been left so badly neglected; I am an Expert Procrastinator. With everything. If I can put off doing something, I will. In my world, things get done as close to the deadline as humanly possible. And when there is no deadline..? Well, quite often things don’t get done at all.

Towards the end of last year, just around the time when I had to finally accept that that ruddy Harry Potter post wasn’t going to happen that side of the new year, I made a promise to myself [I hesitate to call it a new year’s resolution, because those are clearly made to be broken, right?]; that I would manage to upload one post a month in 2018. So, here I am, at just gone 6 a.m. on a Wednesday in the second to last week of January, writing something to kick the year off.

I know this hasn’t been the most inspired or thought provoking post, but, it’s a start.
And, hey – February is just around the corner!

Although, knowing me, you can probably expect the next update on or around the 28th….. And that’s only because this isn’t a leap year. ;)

Anyway, until then – loyal followers and new arrivals alike;

Be Kind to Your Selfs

xx

Living Without Dying

My last post was in the main concerned with writing about what happened. This time I would like to talk about feelings. Or at least I would like to try to do that. I’m not sure that I will be able to, but I do want to try. So, here goes..

I know that I wrote in my previous post that my immediate reaction upon waking in the hospital was that I was glad that I had indeed woken up, that I was glad that I was still alive. And that is absolutely true. I was. In fact, I am. But, as always, things are never quite that simple and straightforward. Naturally there is a plethora of emotions surrounding the fact that I am still here today. And that is what I would like to write about today.

There were reasons for why I was suicidal in the first place, and surviving a serious intake of poison does not take any of those reasons away. All of the things I was dealing with before are still just as present now. In the words of the esteemed Dr. House: ‘Almost dying changes nothing. Actually dying changes everything.’

Although, I wouldn’t go so far as to say that I am back at the exact same place I was before, nothing has got particularly easier. Yes, the happiness about being alive does help, gives me some kind of energy to keep trying, to keep at it a little longer, but, that isn’t in itself a magic cure. In some ways, the very fact that I am happy that I survived actually complicates things. You see, for me, ending my life has always been a viable Out, a thought that has been been my constant companion throughout life; I genuinely can’t remember a time when I didn’t feel that if things got too bad I could always choose to get off the train.

But what happens when you wake up, having very nearly fallen off the proverbial train and you realise that you’re actually pleased that you didn’t? Well, it means that you are suddenly in a brand new and very special kind of Scary Place. You are in just as much unbearable pain as you were before, but suddenly you haven’t got that Out anymore. So, somehow you have to find a way to live, without the option of dying.

I am not saying that I have left the option of death as an Out forever behind – as I wrote earlier – nearly dying changes nothing – including that, I suspect. But, for now, this option has been moved from being constantly right there on the table, sitting right next to my tea cup, to being stuck somewhere at the back of a bottom drawer.

I am not naïve enough to think that I will never again find myself sitting there at the jumping off place with both legs dangling over the edge, but I am also in tune enough with myself to know that this feeling, the feeling of actually wanting to be alive, is very very different to anything I have ever experienced before following a suicide attempt. And, I am – or at least I’d like to think I am – wise enough to recognise that this is a significant shift in me. And that I need to use that shift in some way.

But, how do you live without dying?

Well, the honest truth is that I don’t know; I haven’t got an answer to that. I’ve never been in this situation before, and I don’t really know how to deal with this.

So, for now, I am following a very simple rule: take each day as it comes and make no major decisions until I have some distance, until I can look at what has happened with some perspective. And I think the best way to get to such a place is through maintaining an open and honest dialogue with those around me.

That – and lots and lots of therapy.

Do be kind to your Selfs,

xx

A Much Delayed Update

It has been such a very long time since I last posted anything on here, it feels all but impossible to try to catch you all up. And maybe it’s not really the most important thing in the world that I do? If you’ve been following this blog for a little while, you’ll probably already have some idea of what sorts of ups and downs you might have missed in the last few months. After all, there is nothing new under the sun. And if you have only just arrived on my site, well, feel free to hop on board as you are.

So, I’ll just begin with where I am at now. Literally.

I am at home, very slowly trying to allow my body to recover from the hell I have recently put it through. I suppose you could say that I had been on a slippery slope to nowhere for a long time, and a number of weeks ago, my therapist started a referral for me to go to Drayton Park. I was already with the crisis resolution team at this point, struggling enormously with trying to keep myself safe. Being at a very low point, the only way I could really manage was by taking sleeping tablets. Paradoxically not to kill myself, but to stop myself from doing so. Perhaps not the best way to manage, but it was all I could do at the time. The referral to Drayton Park took longer than usual for a number of reasons that I won’t bore you with, and being asleep most of the time while I was waiting was the only way I could think of to stay safe. After all, if I was knocked out there was no way I could actually act on my suicidal impulses. Right?

A little over a week later I was finally given a place at Drayton Park, and that felt like such a relief. But it wasn’t all smooth and simple. The depression and the suicidal ideation, the flashbacks and the urges to self-harm came with me. And, although I have stayed at Drayton Park about a million times [OK, maybe not a million, but certainly enough times to feel at home there] this time felt like a distinct travel back in time. You see, the only room available was the one room I have always dreaded being put back in; the room I stayed in during my very first time at Drayton Park. Yes, I have stayed in other rooms there more than once with no problem, but this one holds some particularly bad memories for me; this is the room I died in. And this time it isn’t an exaggeration – I was found lifeless in that room, and while I have no actual memory of it, I was told by the doctors in ICU that I had been clinically dead for a number of minutes by the time the managed to bring me back.

The reason I was found lifeless in that room all those years ago was my own. I had brought a substance into the place that I shouldn’t have, and being the kind of person who – owing to deep seated psychological issues – is far more afraid of being found to have broken The Rules than to tell staff that I was afraid of what I might do, and that I needed help, proceeded to ingest said substance. So, this time around, being back in that room, I was overcome by memories of standing in front of the mirror in the bathroom swigging pure poison from a bottle, quickly followed by a handful of Smarties to mask the bitter taste, looking at myself, hoping to die.

This time around I used my one-to-one sessions at Drayton to talk about these memories, about the sense of being thrust back in time and the feelings evoked, and I was immediately and repeatedly offered to switch rooms. But, me being me, I thought there might be some therapeutic value in being able to stay in the same room, look at myself in the same mirror, but having a different outcome. I thought that the feelings brought out by staying in this particular room might be used for healing, for psychological growth, even. Sadly, I seem to have completely forgotten that the reason I was back at Drayton in the first place, was that magnetic lure of release from life – and that I wasn’t strong or stable enough to do this kind of work at this particular time. And it proved to be a costly miscalculation on my part.

Prior to admission to Drayton Park I had purchased another bottle of a similar but far more lethal poison, and it was still sitting at home, waiting for me. Thus, part of the objective of my stay this time was to get me to a place where I would be stable enough to be able to safely go back to my flat and pick up the bottle to hand it in to staff, without having the urge to down its contents on the way back. I was working very closely with both P. and staff at Drayton to get to this place, we talked about my feelings, about the reasons for those feelings and how best to keep me safe – we really were doing everything possible to get me out of this perilous place I had been perched at when I first arrived.

Admittedly, at first there was a fair bit of pressure for me to bring the bottle back at the earliest possible opportunity, but this plan was thankfully changed, when I – with the help of P. and staff who have known me for a long time – were able to to explain that bringing back the Bottle before I was ready to do so wouldn’t necessarily make me any safer; I’d just order another one online, or I’d feel pushed to act out in some other equally dangerous way. [Having a severe nut allergy means that I am never further than a chocolate bar away from having the means to end my life]. Instead we planned trial runs to my flat where I would go into my flat but not into my bedroom [where the bottle of Poison was kept]. I’d pick up post or a change of clothes, but there was no expectation that I bring the poison back. This worked. Twice. In fact, during one of my visits home I managed to – relieved of any pressure to perform, so to speak – bring back the anti-sickness tablets that were also part of my suicide plan. It was hard going back to the flat; in spite of our best efforts to have strong safety plans in place and in spite of never staying longer than ten minutes, I never quite felt safe.

Partway through my stay P. went on leave, as did K. This meant that most of my usual safety net was no longer available to me. And that, too, was hard. Destabilising, is the word that comes to mind. I knew that I would not be able to stay at Drayton until they were back from their respective leaves, and that didn’t feel good at all. So, fear of going home – having still not been able to hand in the Bottle – intensified. Towards the end of week two I was asked to make a Week Plan, to add structure to my stay, which I did. Knowing how hard it had been the two previous times going back to the flat, I only planned visits home for every other day, so as to not overwhelm myself.

But on the very first day of following my Week Plan I knew I wasn’t stable enough to be able to go home, even for a short visit. It was one of those very bad days with lots of flashbacks and thoughts of how much better things would be if I were dead, so, I switched days on my planner, did my Tuesday plan on the Monday. And it would have worked out fine, except the next day was just as iffy as the previous one, safety-wise. I wanted so badly to be able to stick to the plan, though, since otherwise there would be fewer opportunities to go home before actually being discharged. And I knew discharge would be coming, whether or not I had brought the Bottle back.

I want to pause here to make something perfectly clear: there was absolutely no pressure from staff for me to go home that day – none, zero, ziltch – and that is really important to understand – they were all working hard to keep me safe. All pressure to go home that day came from me, and me alone. But, in the end I did decide to push on through. And that turned out to be a near fatal mistake.

When I first got to the flat on that third trial run I felt anxious, but sort of within the realm of what I could manage. So, before entering I rang Drayton to say that. All was good, I sat in the kitchen for a bit, I even wrote an angry note to my flatmates about the washing machine not having been fixed during my two week absence. Everything felt normal.

And then suddenly it didn’t.

I know that I went and took a sleeping tablet in desperation. At the time I really thought it was just the one, so, that is what I told staff when I called them in panic. They stayed on the phone with me until I was out of the flat and I got a taxi back to Drayton. I saw my main worker when I got back, and prepared to go to bed [after all it was a sleeping pill I’d taken]. We agreed that they would check on me every hour, just to make sure I could be woken up, since I have a history of taking overdoses in a state of dissociation, and I couldn’t say with 100 per cent certainty that I hadn’t done so this time, too. [Entering a dissociated state is actually far more common than you might think, especially for people who have suffered severe abuse and have used dissociation as a coping mechanism all their lives]. About quarter of an hour later I knew that I must have done more than just taking a single pill, because I was feeling nauseas and drunk and was losing control over speech and movement. So, I went straight to the staff office and knocked on the door. [This is, incidentally, the exact opposite of what I did that very first time at Drayton]. The last thing I remember is lying on the sofa in The Quiet Room with a member of staff next to me, being told that an ambulance was on its way.

I woke up in hospital. I knew immediately that I was in hospital, because nowhere else on earth are you met with those cold harsh lights, and those ugly tiles in the ceiling. That is my first memory. My second one isn’t so much a memory as a feeling, a feeling of immense relief that I was alive, that I had in fact woken up. And I knew that was a big deal. Every other time I’ve woken up in hospital I have felt nothing but sheer anger that I hadn’t died, wondering what I had done wrong, thinking about when I could do it again.

I spent a number of days in hospital being given antidote every twelve hours. And that was one of the most scary experiences ever. The relief of being alive soon wore off, and the fear of not knowing whether or not I would actually live – and what that life might be – took over. I knew that things were bad, really bad – not just from the vast number of tubes coming out of my body or the urgent frequency with which blood tests were taken day and night – but by the fact that when I tried to ask doctors and nurses would I be OK, they avoided eye contact and would generally mumble something along the lines of Let’s not worry about that right now, sweetie.

It wasn’t until the very last day, the day I was due for discharge, that I finally found out the truth of just how close it had got. I didn’t ask the doctors or nurses this time because I didn’t trust that I could deal with what they might have to tell me, instead I reached for the journal folder at the foot of my bed. And there it was in black and white. Multiple organ failure. Prognosis: poor.

Of course, by the time I read those journal notes, I was out of immediate danger, but it was still a shock to see it. This was what I had done to myself.. I had put kidneys, heart and respiration at serious risk. When the first tox screen came in they didn’t think I’d live, and if I did I’d likely have reduced function of at least some of those organs.

I have now been at home for about two and a half weeks. I am extremely fatigued and am sleeping most of the time. Any little thing exhausts me. I have had follow up tests and the results are not great. They aren’t anywhere near as bad as they could so easily have been, but I am also not recovering at the rate the doctors would have hoped. So there will be more tests to come. In short, I still don’t know the full extent of the damage I have done to myself.

But, I am alive.

And I have a lot of feelings about that.

 

I hope that I will be able to write more about those feelings soon. –ish.

xx

 

 PSI want to make a special mention that I have chosen not to share what has happened with my immediate family, in an effort to spare them pain and worry. At least until I know for sure what I am dealing with. So, should you be someone who knows me in person – and knows my family  – please make sure to keep this information to yourself. This blog is semi-anonymous, not for my sake, but for the sake of those close to me. It is also a place where I can safely share my feelings, and that means a lot to me.

 

 

What Happened Next

The Ephalant In The Room – A Real Talking Point

So.. What happened next..?

Well, it turns out I was right. A stay at Drayton Park was indeed on the horizon. A long stay. Four weeks, to be precise. It was a difficult stay, but, then again, by its very nature going to a crisis house is never going to be all that easy. I struggled hugely with life and death, or perhaps it would be more appropriate to say that I struggled with life to such a degree that death seemed a better option? Also, in the midst of a all that I developed shingles, which is of course exactly what you need when you’re at a stage where death seems a better option. Let me tell you, the pain is excruciating; I should know, this was my fourth ride on the shingles merry-go-round.. And, because things are never straight forward, the antiviral meds I was given this time to help with the shingles made me violently sick and ended in an ambulance ride to the hospital, being on a drip for 12 hours, to rehydrate me. Also, there was strong suspicion that I had suffered a mini-stroke [a TIA], as both a friend of mine and staff at Drayton Park had observed my speech being intermittently slurred in the two days prior to my becoming ill from the antivirals, something which couldn’t be attributed either to the shingles or the medication. So, you can see what I mean when I say that this was a particularly difficult stay. – There was also a racist incident which had a big effect on my stay, but I don’t really want to go over that right now, because it will only upset me, and for the time being, any upset I can spare myself is good.

 

There Is Often Much Going On Beneath That Which Seems Crazy And Fantastical On The Surface

 

The life-and-death dance aside, when I was offered a place at Drayton Park, I made a conscious decision to try to actively balance out the destructive impulses with creativity, so, as always seems to be the case when I am at Drayton, out came the paints and canvases, and I spent many many hours doing art. Particularly when I felt overwhelmed by urges to step over the edge into nothingness. The fruit of my labour is dotted throughout this text..

Child And Giraffe

 

Four weeks later I was discharged from Drayton Park, except it was a discharge back into the care of the Crisis Resolution Team, whom I have now been with for almost three weeks.

Crisis houses, even the ones that are as therapeutic as Drayton Park, aren’t magic cures for all emotional ills; some wounds are too deep, bleed too heavily to be stopped even by a four week super absorbent bandage.. But, they do a lot to help stem the flow. And the referral back to the Crisis Team was another step to try to further slow the bleeding.

IMG_3549

Three Ephalants And A Tree

Also, thankfully, P. is now back where she belongs; in her chair opposite me. [Although, owing to the High Holy Days sessions have been swapped around a fair deal. – The great thing about having a Jewish therapist is that you don’t have to cancel sessions over this period, as they will most likely already have arranged to be on leave on those days. That is if you yourself are Jewish. If you’re not, I imagine that it would seem like a series of extremely random short leaves every year as we go into autumn..].

But, I digress.. Where was I? Oh yes.. P. is back. And, man, does that feel good. As difficult as things still are [I’m not with the Crisis Team for the fun of it], it is incredibly helpful to have her to talk to. And email. And text. [I’ve come a loooong way from the days of seeing A. and only emailing in extreme emergencies]. In these last few months, P. – and also K., my social worker from shul – have been absolutely amazing. I mean, they were of course amazing even before this, but these last few months, by golly they’ve done some mammoth work with me.

 

Polar Opposites – When Olaf Met Elof

 

Things are still very very difficult, but with the amazing support of P., K. and the Crisis Team, I am doing the best I can to make it through each day. I would be a liar [and those who know me, know of my acute allergy towards being just that] if I said that I am not still sitting on the very edge of life, with one foot dangling over it.

But, whatever happens next, no one can say that I haven’t done my very best.

xx

Running Up That Hill

*

And if I only could
I’d make a deal with God
And I’d get Her to swap our places
I’d be running up that road
Be running up that hill
~ With no problems..’

*

*

I’m not sure what Kate Bush had in mind when she wrote that song, those lyrics, but they really speak to me. I feel I’ve been running up that hill forever now, getting nowhere. It isn’t getting any easier, and I really wish there was a way to swap places, to make that deal. I’ve been running up that road for so many years, but nothing has changed. Lots has happened, but nothing has changed.

Last night was the 21st anniversary of the very first time I tried to end my life. I was seventeen and I didn’t know how to make the abuse stop, didn’t dare communicate what was going on – what had been going on for as long as I could remember, because I didn’t know what would happen if I did. So, at the very end of my mother’s 50th birthday I swallowed a cocktail of random anti-depressants, mood stabilisers, sleeping tablets and painkillers. This was before the internet, before you could google your way to the perfect concoction to put an end to your misery, and as a consequence I survived.

I woke up to a whole new world. One where – in a flurry of activity – suddenly lots of people knew about the abuse. Social services got called in. I remember so well how the head of social services – who just happened to be a close friend of the family – told me that ‘No one is allowed to make you do anything that you don’t want to do. Ever.’ Except, of course, that I would have to talk to the police and I would have to go to court, whether or not I wanted to, because those were not things I had the choice to opt out of.. You see where I’m going with this? Something happened, but nothing changed.

I’ve been in therapy for years and years and years by now, and although I firmly believe that talking about what happened – in a safe environment with a therapist sensitive to my needs [as opposed to at a police station or in a court room] – is key to ultimately reducing the traumatic re-experiencing of abuse that I am faced with every time I have a flashback, it feels as if that day is very very far away. Hardly even a blip on a distant horizon.

I know that if I manage to find a way to keep running up that hill – because, trust me, therapy can be such an uphill run – my day to day life could be greatly improved, in terms of the amount of flashbacks I suffer, in terms of being able to make and keep plans, in terms of feeling more in charge of my life. And that would be great. It really would.

But then there is that other thing. The Not Having Children.
No amount of therapy can change that. I could do therapy every day for the next two thousand four hundred and sixty-eight years, and that fact would simply not change. People are forever telling me that ‘No, that wouldn’t change. But, you might change. You might feel differently about it.’

Only I know that I won’t.

This is a wound that cannot heal. There are constant reminders to keep that wound open and bleeding. Three people in my life are currently pregnant, due at various points next year – so I already know that 2015 will be another year of Everyone Else having children. Another year of tears burning my skin as they roll down my face. Of a pain so sharp it shreds my soul from the inside..

And the problem is that every year is going to be A Year Like That. Until it turns into endless years of Everyone Else Having Grandchildren. And I can’t face a life like that. I just can’t.

Even if I managed to somehow accept that I won’t have children, I just can’t accept a life without them.

I will try, as I have been trying. But, I know that one day, soon, I’ll run out of steam. And I’ll stop running.

It is sad.
But it is what it is.

xx

Running Up That Hill [A Deal With God] Copyright © 1985 Kate Bush

Twenty-fourteen – A Year Of Changes & Challenges

I thought I’d make one final push to get an update out before the end of the year. I’m not in a great place, hence radio silence on most channels, but sometimes that’s when the best blog posts come out, so let’s hope for the best. Could be nothing, could be something.

It’s been a rough year. There are no two ways about it. At the beginning of the year I ended with my therapist of five years and started over with a new one. It’s a big transition, moving from A. to P., and a huge emotional undertaking. It’s a bit like being asked to switch out your parents. Sure, your parents might not always get you, might be unfair, might make mistakes, might be downright unsuitable to parent anyone, but at least you know them, right? You know their habits, their triggers, their blind spots and you know how they react to the things you say and do. And you also know how you react to the things they say and do. It’s that comfortable – if often less-than-ideal – Familiar versus the scarily unpredictable Unknown that I’ve written about so many times in the past.

That was pretty much what I was going through with A. at the beginning of the year, as we slowly neared and then reached The Ending. Things had been running along the heading-for-an-irreparable-relationship-breakdown route for some time – probably for far longer than I was ready to admit to you, or myself, at the time – but at least I knew what to expect, knew when odds were that my words would be met with silence, knew when there was potential for disappointment. I also knew what not to say and what not to do to keep the status quo, to keep us from falling off the edge. In addition, I was standing on the bedrock of our previous years together, all the times we had communicated really well, spoken a similar emotional language. I had a good sense of where we had one another, of how big or small the distance between us was at any given time, how close we could get, how much trust there was and where the boundaries of our relationship were; all those things that had made our work together so meaningful and fruitful for such a long time. So, it was with a lot of sadness that I had to accept that the time for us to part ways had come.

I had met P. only once before we actually started our joint therapeutic journey. Fifty shared minutes during an initial consultation to decide whether or not we could be A Match. I left that first meeting in December last year feeling that, yes, she could potentially be someone I could learn to trust, given enough time and space to Thoroughly Test what sort of stuff she was made of. But, apart from that gut feeling I didn’t know much about her [or attachment-based therapy] when I went for my first real session in February. I knew that there was something about the way she actively sought to make eye contact in that first meeting that both scared me beyond reason and made me feel that she genuinely wanted to get to know the real me. Actually, let me rephrase that: the way she actively sought to make eye contact with me scared me beyond reason, because she so clearly wanted to get to know the Real Me. Not just the Me she could glean or guess at from the polite introductory phrases or the bullet pointing of my fragmented, chequered and often painful past during this initial meeting, but the Real Me hiding behind all that – the Me that only comes out after the Thorough Testing has been done. The Me that even A., after nearly five years, was only just beginning to get to know.

I took the plunge, and it turned out that the water was far more calm and warm than I had expected. As K. put it only the other day: ‘When you finished with A. I didn’t think you’d ever be able to build a relationship with another therapist. I thought the trust had been shattered for good. I’m amazed at how quickly your relationship with P. has developed.’ I get exactly what K. meant, because it was what I, myself, was thinking at the time. How would I be able to trust? Why should I?

I suppose the answer to that lies in the way P. is, really. I wasn’t at all ready to trust, and P. was able to accept that completely, without any expectation that this would change. Was able to meet me where I was at. She was able to accept that I simply didn’t know if I really wanted to go on with therapy, or even with life. The exact thing that had ultimately caused the breakdown with A. The very thing A. had made clear she couldn’t accept; that I may not only feel that life wasn’t for me, but that I might actually act on it. P. made me, almost immediately – without the Thorough Testing – feel that this was a part of me she could accept. She in no way gave me license to act, but she simply accepted that this could be one of the paths our journey might take.

Then, of course, only a few months later this was put to the test. A splash of a toxic chemical on my tongue, the swallowing of some tricyclics – which I still to this day don’t remember taking – an ambulance ride from the women’s crisis centre to A&E and eleven hours in a coma.

Some might say this was part of my Thorough Testing. I’m not going to argue for or against. All I know is that we survived it: P. didn’t break, didn’t conclude that the reality of acting out was so different from the theory and phantasy of it that she could no longer work with me.

And our relationship grew a little stronger.

The aftermath of this overdose – along with a previous, more serious, intake of that same ototoxic chemical – was the loss of most of what remained of my already damaged hearing. Another big thing to deal with; the knowledge that my actions would have a lifelong effect – near deafness. But, also, in a backwards kind of way, the realisation that even when I mess up it is still within my power to do something about it; the decision to hop on the not-so-joyful steroid ride, the slight but miraculous recovery of some hearing, the sorting out of hearing aids [even though it at times makes me feel I’m ninety-something rather than thirty-something].

And all year long this journey has of course been fenced in and intercepted by flashbacks, by horrendous memories of a past that is never really in the past and by nightmares that don’t go away just because I wake up. Post but-never-quite-over traumatic stress disorder. The stuff that makes day to day life all but impossible to plan. The never knowing if a day will be a 40, 100 or near continuos flashback day. Making plans, cancelling plans, scheduling and rescheduling – because I simply can’t know in advance if any given day will be one where I can leave my house without putting myself at risk.

At the moment it seems worse than usual, more 100-a-day days than 40s. I went to visit my father for the first time in two and a half years at the end of November. That may have something to do with it. I don’t know. It might be related to the fact that both P. and K. have now gone on their respective Chrismukkah breaks, leaving Little S. feeling sad, scared and abandoned, and Adult Me struggling to cope in their absence. Or it might be chance. But, whatever the reason, it’s not so easy to deal with.

Anyway, I want to take the time to thank all of you who have faithfully stuck with me through the ups and downs of this year, in spite the updates being few and far between. It does make such a difference to me. It touches me deeply every single time one of you takes the time to post a comment or write me an email to share a bit of your Selfs with me. I know that is how most of my replies to your communications begin, but it is for a good reason: it’s the truth. I am very grateful for your support.

So, wherever you are in your lives, whatever is going on for you right now, good or bad, I do wish you all the very best.

xx

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Consequences Of One’s Actions

A lot has been going on in the last few weeks [or is it months?] since my last proper post. There have been some serious ups and downs, and I don’t quite know where to start.. So, I’ll just start with what’s on my mind right in this moment: my hearing. Or, rather, the lack thereof.

I’ve not really written about this before, because up until about a year ago, it’s not really been too much of an issue, or at least it has been an issue I have had the luxury of being able to ignore.

As my long standing friends will know I lost a big chunk of my hearing many many years ago, when I was about twenty. I was doing voluntary work at an orphanage in a village outside a village outside another village, in the Middle Of Nowhere, India. It was Diwali, the Hindu festival of light, and as a special treat for the children we had bought fireworks and penny crackers, which they were allowed to set off. All was going great, big bright smiles all around, lots of happy dancing and singing.

Until one of the kids threw a firecracker up in the air and it exploded right next to my left ear. My whole world went silent in an instant. It was one of the most terrifying experiences of my life, that sudden and complete absence of sound. I remember screaming, but not being able to hear the sound of my own voice.

Over the next hours and days some hearing in my right ear did come back, but the hearing in my left ear was almost entirely gone. I managed to see a doctor when I went into town a few days later. He very carefully examined my ear and hearing and confirmed the damage with a simple “This is not good” and a slow, sad shake of his head.

And that’s pretty much how it’s been until recently. I knew I could probably be helped by wearing a hearing aid, but I simply wasn’t ready for it, and since I was able to use the remaining hearing in my right ear well enough to compensate for the loss in the left, I just left it at that. Something was broken, but not enough to bother fixing it.. There has been a lot of “If you want me to hear you, you’ll need to walk on my right – if you’re only going to talk rubbish, stay on the left” going on over the years, but all in all, through a combination of lip reading, context deduction and plain ol’ guesswork, I’ve been able to fake hearing pretty darn well. It’s amazing how easy it is to just laugh when everyone else laughs at the end of a joke you haven’t even heard, or to cover up giving the wrong answer to a question..

However, a bit over a year ago I started noticing that I was no longer as able to compensate with my ‘good’ ear as I used to be, and – being fifteen odd years older – I decided that it was kind of silly to routinely pretend being able to hear when I couldn’t, and that I should really do something about it. So, I went to have a test.

The results were shocking; not only was the hearing in my left ear really poor, my right ear was also significantly worse than I had thought. I was advised that I was a prime candidate for double hearing aids, and that I should get my GP to sort out a referral [private hearing aids are horrendously expensive].

A number of months later I was finally given an appointment at an NHS hospital. Only by the time I had that second round of hearing tests there had been a distinct further drop in my hearing, particularly in my right ear, and as this wasn’t normal I needed to be seen by an ENT specialist. The audiologist told me that this kind of drop could quite possibly be down to an acoustic neuroma – a fancy way of saying that I might have a brain tumour affecting my hearing. Consequently, an Urgent Referral to an ENT specialist was made. For those of you who don’t know, an Urgent Referral in NHS/ENT terms means ‘probably around three months’. Thus, I spent three months trying to not give myself cancer by worrying about this possible tumour, while not being able to hear what people were saying, since hearing aids can’t be issued while you are still under investigation.

The three months passed and I very nervously went for my appointment, having absolutely no idea what to expect. It turns out that in those three months since my last appointment a second drop in hearing had occurred. More bad news. On some level I kind of knew this, but I had talked myself into believing that the drop was ‘just in my head’, that it was simply down to a higher awareness of my hearing loss, having now stopped pretending to be able to hear when I can’t – but – the audiogram clearly showed that this was a genuine drop, and not something I had imagined.

The ENT specialist sat me down and took an extremely detailed medical history, after which he concluded that it was exceedingly unlikely to be an acoustic neuroma, as only 13 people in 1,000,000 have them, and that my sudden sensorineural hearing loss [SSNHL] was far more likely to have been caused by my two most recent overdoses, as the drops follow that pattern precisely, and the chemical I had taken is well known to cause hearing loss in those who survive the overdose.

Needless to say, to me, this was quite a powerful emotional bombshell. I had been medically cleared after those overdoses and there had seemed to be no lasting damage.. But, clearly, this was not so, and I was now seeing the consequences of my actions in black and white.

The ENT person said that it was possible that the SSNHL might not be permanent, and that a short, high dose, course of steroids might jump start some hearing cells in my ear, partially reversing some of the loss. Ideally this kind of treatment is given within days of the hearing loss occurring, rather than months later, so it was in no way certain that the treatment would work, but he felt that it was definitely worth giving it a go, because whilst there wasn’t really anything to be done about the hearing loss caused by the initial blast trauma, there was still a slim chance that the more recent drop could be helped. I’d still need hearing aids, he told me, but I might be able to avoid cochlear implants further down the line.

I’m going to end this update here, simply because this is already a massively long post, but, I will write more about what happened with the steroid treatment and my hearing in the next few days.

I feel very aware that I haven’t really talked about the emotional impact of not being able to hear, or the fact that part of my hearing loss may have been caused by my own actions, and I hope that I will be able to touch more on that in the second part of this saga, because – of course – this is a big deal.

Until then, do be kind to your Selfs.

xx

PS. I’ve yet to sort my PC out, so I do apologise if the formatting of this post is a bit rubbish; it was all typed on an iDevice, and that’s a lot fiddlier than one might imagine..

Life’s A Dance You Learn As You Go

To me, writing is like breathing; a necessity for life. So, the fact that it has taken me this long to feel able to update my blog may be an indication of the degree of difficulty I have had in holding on to life itself. For the past several months the wish to just let go, to allow myself the luxury of that Final Rest, has been a minute-to-minute struggle. It hasn’t been a crisis as such – at least not in my eyes – and there has been a very definitive lack of urgency about it all. No mad dash towards the Ultimate Finish Line, just a steady step by step journey towards a glittering End ahead of me. It stems from walking around with a soul that is simply so tired, so emotionally exhausted that it naturally gravitates away from life. The strings I have used so many times in the past to pull myself away from the edge are either broken or have disappeared altogether.

I wrote in my last post about having a flat battery and a faulty charger, and that, to a large degree, is still how I feel. Like I am running on empty.

But I am still here, and not only that, I am here through my own very conscious decision to be so. It isn’t a case of Death all of a sudden having lost its vice like grip on me; I can still feel those cold skeletal fingers around my ankle.. but, I can also feel my other foot – the one Death has yet to reach, planted firmly, barefoot, on the soft grass. It is a defiant “I decide when I step across that line, not you.”

I have always felt that ending one’s life ought to be a decision, not impulsive acting out because things are so unbearably difficult in that one particular moment. I wouldn’t ever want my loved ones to be left wondering What if she had only just got through this crisis? Would she still have made the same choice?

I am not so naïve as to think that a ‘painless suicide’ exists – suicide always comes with pain in its wake – and I accept that whatever the intention, there will always, inevitably, be question marks forming for those left behind, but I would like to have done my best to minimise the suffering. I would like them to know that this was what I really wanted. And this is one of the reasons why I am still here today. Because I will not let go while I am in the middle of what is a very difficult period. You simply cannot make a rational, reasoned decision in the midst of chaos.

In the last week I have yet again entered one of those nightmarish periods where one flashback follows the next – ceaselessly, relentlessly. It is an incredibly painful place to exist within, a place where it feels as if nothing is my own, where I keep being pulled under the surface again and again and again, with hardly any time above water to catch my breath. And even though I know that this won’t last forever, it certainly feels endless.

In session today, P. revived the metaphor I used before of jumping into the pool, not knowing whether or not I would be able to swim, and she reiterated how it is her job to be the life guard. She said that we need to work together to create metaphorical armbands, to help me stay above water. My immediate response to that was that I taught myself to swim, without water wings, thank-you-very-much, that, in fact, I actually learned to swim under water, before I figured out how to do it with my head held above the surface.

I have often said that even though I generally learn new things quickly, I am an emotionally slow learner – but now I am sitting here, thinking that maybe it is really that I am a slow unlearner. In the months since I started seeing P. I have struggled with echoes of past relationships, with trusting P. to know her own limitations and have automatically and without thinking taken on sole responsibility for managing our relationship. I can see where this need to be in charge comes from, and I know what the original sources of those echoes are.. What I find difficult to do, however, is to make a different choice this time around. While I have needed to be solitarily strong and in control in the past, this may not still be necessary. It makes me think of a ’90s country song that goes “life’s a dance you learn as you go, sometimes you lead, sometimes you follow”..

You need to have that balance in a relationship; to sometimes lead and sometimes follow. I am pretty good at the first, but markedly less so when it comes to the latter. And maybe, just maybe, it isn’t such a bad thing to allow someone else to lead every once in a while..?

 

xx

 

Life’s a dance you learn as you go

Sometimes you lead

Sometimes you follow

Don’t worry about what you don’t know

Life’s a dance you learn as you go

 

Life’s A Dance © 1992 Shamblin & Seskin

Endings: Standing On The Brink Of The Unknown

Being in therapy is being in a relationship. Therefore it follows that ending therapy is an as complex and complicated – and sometimes painful – process as ending any other relationship. There are loose ends and jagged edges to deal with, memories – good and bad – to look back at, and a struggle to not panic and in desperation seek to go back to something that just isn’t there anymore.

I have always said that things that are familiar are often also comforting to us, even when The Familiar isn’t necessarily a good thing in itself. The Familiar is comforting because it keeps The Unknown at bay. And nothing is more frightening than The Unknown.

I have four more sessions left with A.
Four more sessions, after more than four and a half years of working together. In short: it is nothing. I am standing only millimetres away from The Unknown, and I have to find the courage to not turn and run, but rather to allow myself step in to and somehow tolerate existing within it.

I have been spending a lot of time over the Chrismukkah therapy break thinking about what exactly it is that makes this ending feel so difficult, because, intellectually I can see that ending work with A. has more or less become a necessity, both because I am unable to give her the reassurance that she needs that I won’t end my life, and – perhaps more importantly – because we have simply come as far as we can, working together. The conclusions I have reached, as to why the ending is difficult is summed up in the first paragraph of this post; this is the end of a very special relationship, so how could it not be difficult? But, on top of that ‘normal’ difficulty, apart from the anxiety and sadness and sense of loss that any ending brings with it, I think that there is something I need to take from this relationship, which I fear A. might deny me, and this is what makes it so much more painful.

In November, when I finished counselling with Z. – that, too, was a difficult ending. But, I do feel that in the last few sessions – and especially in the very last one – Z. managed to provide me with that one thing I needed: the reassurance that it mattered to her too, that we would not be working together anymore. That I had made an impact on her. That she would actually miss seeing me. What I am talking about here is not a need to be told that I am her favourite person ever to work with, but something far more simple; an open acknowledgement of the fact that working with me is special, because I am special: there is only one of me. So even though my slot would soon be filled by someone else, someone just as engaging, it is still different, because the relationship between Z. and I could only happen because of who we are as individuals, and what we accomplished in those sessions was specific to our relationship, to what we jointly brought to the table.

I talked with A. about this ending at the time, explaining that those things Z. said to me meant a lot, and significantly helped make that ending, if not less difficult, at least not painful, and left me with something positive to carry forward. The fact that Z. actually told me these things, actually said them out loud, rather than simply assume that the way we had been working together and the way we relate would automatically lead me to know it, I think is important. People who have been abused tend not to take things like that for granted, because actions and the meanings of those actions have been so terribly mixed up and confused in the past.

So, I suppose, what I would like from A. is something similar. I’m not talking about any earth shatteringly emotional revelations or dramatic proclamations, but just something said, in clear plain direct speech, about the work we have been doing and about what this ending means.

I asked A. earlier in the year if I matter to her, and she decided to not answer my question, and I am sure she has her reasons for that, but, I think what I need – especially now – is for her to step away from those reasons, whatever they are, and just meet me openly and honestly. The lack of this direct communication in the last few months, is part of why therapy is now coming to an end, and seeing as there will be no Next Session in which to analyse why I asked the question, an answer would be good, would provide me with that Something that I need.

But, as I wrote earlier, my fear is that A. will not opt to go down this route of openness and honesty, and this is where I feel the pain is created. To need to hear that working with me has mattered to her, that getting to know me, hearing my thoughts, means something, is important, and to leave, having been denied it, would be excruciatingly painful.

Of course, I don’t know that this will be how things end, and I really hope that A. will have taken onboard the things I said about ending with Z., and what made that a more positive ending. But, the fear is still there, looming like a dark cloud over my head.. I am seeing A. for the first time after the break tomorrow, and I will carry on talking about all of these things with her, as I had been before the break. I just hope that her response will be different.

*

Before concluding this post, I just wanted to say thank you to all who have emailed me following my last post. I am sorry that I haven’t been able to reply to all of you, but, hopefully, in time, I will. I know that this post hasn’t really been a direct follow-up on the previous one, and it isn’t because I am trying to shy away from the seriousness of the situation, which remains sadly unchanged, but because I feel that – for now – I need to try to deal with things in slightly smaller chunks, and if that means navigating by auto-pilot for a little while, well, so be it. As my sister said We much prefer Auto-Pilot to No Pilot..

But, once again, thank you all for your very kind emails and comments. They have been read, heard and appreciated.

Much love,

xx