The February Post – Anxiety…

Anxiety. That’s the word of the month for me. Not just the usual anxiety that I struggle with, about clearly identifiable things like ‘Will there be a horrible brown envelope from the DWP in the post today?’ or ‘What if the new flatmate turns out to be really scary?’, but that awful non-specific thing we like to call generalised anxiety. It been coming over me out of nowhere several times a day, gripping me with its icy cold claws, digging into my skin, even my soul – and there is absolutely nothing I can do about it. My heart pounding so hard and fast it makes me think that there is a genuine chance it might explode in my chest. That sense of doom, of just knowing that no matter what I do, something very very bad is going to happen, and there is no escape. That horrible fizzy feelings behind my knees that makes me feel simultaneously completely paralysed and as if I can’t be still for even a second.

That. I’ve had an awful lot of that this month.

In therapy P. and I try to slow things down, try to work out what it is I am reacting to – but, unlike anxiety about something tangible and definable, this fuzzy whizzing fog of fear won’t be so easily captured and analysed. Of course we know that if there are a lot of things going on for me, I am much more likely to experience these episodes of panic and anxiety – but more often than not, it feels as if it’s been triggered by something so microscopically small that we can’t even distinguish it with our emotional super lens trained directly on it.

I can’t remember a time where I’ve suffered quite so much with anxiety (that wasn’t caused by something specific). And this constant fighting off an unseen enemy is exhausting. Recently I have even been considering whether or not I may need to look into getting prescription meds to help me manage it all.

Now, I know that many people have strong feelings about the use of medication to treat mental health disorders. Some feel they are an evil that should be avoided at all cost, while others say that they are absolute life savers. Personally, I am not for or against using meds. I have not been on any kind of medication for a very very long time – but the reason for that is that I have had some very severe adverse reactions to a number of drugs (both ones to treat physical and emotional ills), and for that reason my GP is very reluctant to start me on anything I’ve not been on before. Also, the one psycho-pharmaceutical I have ever been on without having one of those aforementioned severe adverse reactions happens to be one that is frighteningly high on the toxicity index, so – owing to a proven tendency to not stick to agreed safe dosages – I am rarely allowed to have even that. But, as I said, at the moment the anxiety is so bad that I am seriously considering trying to persuade my GP to let me have some sort of anxiety reducing chemical prescribed. (I’m not terribly hopeful that she will agree to do so; she once told me that she ‘doesn’t prescribe sleeping tablets for sleep’ in an attempt to not have to prescribe me an untested medication).

This kind of anxiety is kind of new to me. Or, at least having such frequent episodes is. I’ve had panic and anxiety attacks before, and I am a pro at getting exceptionally anxious about anything that could possibly go wrong – but I’ve never had multiple episodes every day. I am very used to suffering from PTSD flashbacks – I have those all day, every day – but this is something very different. As horrible as the flashbacks are (and they really are truly disturbing, each and every one of them), at least once I have managed to come out of them, I know what they were about; there is a distinct traumatic event attached to each one of them. But these anxiety attacks.. I really don’t know what to make of them.

Of course P. and I will continue to explore them, and hopefully they will get better. But for now.. it’s really tough.

Anyway, I think I’ll end this post here. It’s not quite the update I would have liked to write, – but I guess it is what it is.

To all of you out there,
be good to your Selfs



Out Of Control – Me On Steroids

There I was, having been told that there was a good chance that my hearing loss was due to my own actions. Not an easy thing to deal with. Part of me absolutely felt angry with myself, was blaming myself; I have a natural tendency to be very hard on myself – especially when the consequences of my actions turn out to be severely negative. But, there was also another part that just felt confused, because whilst the second most recent overdose was certainly a serious one, the most recent one was one where I didn’t ingest more than about half a teaspoon of the chemical, and I couldn’t quite understand how it could have had such a drastic effect on my hearing. But, clearly it had.

The ENT specialist had prescribed a high dose of Prednisolone which I was to take for a week in the hope that it may reverse some of the recent hearing loss. The name of the medication did ring a bell at the time, but not loudly enough for me to clock why, so I went down to the hospital pharmacy and picked the medicine up. It wasn’t until I got home that I remembered that this was a medication which a previous GP had refused to prescribe when my asthma was really bad, because she felt it was too much of a risk, putting me on it. There were two reasons for this: firstly, that people with a history of serious mental health issues are particularly prone to react badly to this medicine, and, secondly, that I have in the past had extreme adverse reactions to three other medications [one of which I was reacting to when I took the second most recent overdose], so the doctors are always very cautious about prescribing any non-essential new meds to me.

But, there I was with the medication in my hand, not knowing whether or not it would really be a good idea to take it. Yes, this medication could potentially save me from needing cochlear implants down the line, but, at the same time, if I did have a really bad reaction I could end up putting myself at considerable risk. The ENT specialist wasn’t someone who knew me well [or at all, really], so when he prescribed it, he did it on the same premises he would for anyone else; ‘Worth trying, no harm done if it doesn’t work’, whereas I knew that this medication could spell real trouble for me.

There was a part of me that was genuinely scared of a bad reaction; I knew perfectly well the horrible feeling of being out of control because of a medication. I had been through it three times.. Yet, there was another part that so badly wanted to be able to do something to reverse the damage I had apparently caused.

I spent a week going back and forth, unable to decide what to do, talking it through with lots of people, knowing full well that, ultimately, it was still my decision to make. I did speak to my GP [well, technically, the receptionist spoke to her on my behalf], and she said that it would be ‘perfectly fine’ for me to take the steroids, and – after all – I had had no adverse reactions to the steroid injections I was given when treated for anaphylaxis.

In the end I decided that I would give it a go, because I knew that if I didn’t I would always be wondering ‘What if..? What if..?’.

Still, to be on the safe side, I decided to start the course early Monday morning, so that if I did have a bad reaction I would be seeing P. later that day. [With two of the three medications I had previously reacted badly to, it had happened literally within a few hours of taking the first dose]. I also had a doctor’s appointment on Tuesday, and scheduled a ‘just-in-case’ appointment with K., my synagogue social worker who I have been seeing semi-regularly, for Wednesday afternoon.

Monday came round and I took the first dose, which – as this was a high dose treatment – was a good handful of pills, making me feel as if I was actually overdosing on tablets. By the time I was due to see P. – about six hours later – I already knew something wasn’t right. I could feel things firing in my brain, rapid electric sparks in my head, and it was as if I couldn’t keep track of my own thoughts. It was a truly bizarre experience. – Anyone who has ever been seen by the mental health crisis team knows that one of the questions you will be asked during the assessment is ‘Are you having racing thoughts?’. Being prone to deep depression and suicidal ideation rather than mania I have always answered ‘No’ to that question, not really knowing what ‘racing thoughts’ actually were. I’m telling you, by noon that Monday I knew exactly what they were – and it was freaking me out, big time!

So, I had a crazy rambling session with P. that day, very unlike any other session I have ever had. I also spoke to H., my care coordinator, that same afternoon and she sorted out a referral to the crisis resolution team for Wednesday, as it was clear I was not in a good way and would likely need the extra support, particularly over the weekend.

On Tuesday morning I went to see the doctor – an absolutely lovely F2 who I hadn’t met before. By then I had taken the second dose of Prednisolone – more out of a sort of manic compulsion than anything else – and consequently the reaction was getting worse. I had also used a surgical scalpel and cut myself very badly in two places; enough to warrant stitches. The doctor’s reaction was ‘Come off these meds immediately – this is a really serious and abnormal reaction!’.

I explained to her the reason why I was on the treatment in the first place and why I was finding it hard to ‘just stop taking the meds’, and this young doctor was absolutely brilliant. She sat back and listened to me carefully and then took the time to make five or six phone calls – while I was still in the room – to get hold of an ENT registrar to find out what the implications of stopping the treatment would be for my hearing, so that we’d be able to make an informed decision. The ENT registrar told her that as treatment had been delayed by several months already [Urgent NHS referral, remember?] it was unlikely that my hearing would improve, that the specialist who prescribed the steroids probably felt it was worth a shot – even if it was a shot in the dark – because sometimes people do respond, even with delayed treatment. But, the registrar concluded, in light of the extreme reaction I was having it certainly wasn’t worth staying on the meds, as the odds of success were so small.

I felt really reassured in that moment that I wouldn’t be missing out if I ended treatment prematurely, because the odds of any improvement were so small. It made complete sense to stop taking the meds.

But, then I got home, and I was still hyper and there was so much in me saying that firstly I was already dealing with the adverse effects of this medication [the GP had explained that it would more than likely be a few days, maybe even a week, before the chemicals in my body would stop messing with my brain].. and it was only a few more days to go.. and what’s to say that I couldn’t have an equally abnormal positive reaction to these meds..? After all, my body is clearly highly sensitive to small chemical changes..

So, the next morning I took the third dose, against medical advice. This time it wasn’t manic compulsion that made me do it, but that part of me that just needed to hold on to hope, that simply couldn’t give up, even though everyone around me felt this was a very bad decision, indeed.

I spent time in my session with P. that day, exploring why it was so terribly hard for me to stop taking the tablets, even though the rational part of me knew that the chance of a positive outcome was incredibly slim – and that was really helpful, even with the chaos raging in my head.

I also had a good chat with K. that afternoon. She was characteristically open, direct and honest with me both about her anger and her disappointment that I had carried on taking the medication in spite of what the doctor had told me, and in spite of the fact that I had felt completely reassured at that point that I wasn’t missing out. I told her that I would think very carefully about handing the meds in to P. the next day, but I was also clear that I wasn’t prepared to make any definite promises, because I simply didn’t feel that I could. So much of me felt out of control and I just couldn’t say that I’d be able to do that, come morning.

Oddly, the thing that made me realise just how out of control I really was wasn’t the fact that I had cut myself so badly, but the fact that I found myself at a McDonald’s having a Big Mac.. I’ve been a vegetarian for something like twenty years, and I keep sort-of-kosher, so for me to sit down and eat something like that goes against so much of what I believe in. It is something I simply wouldn’t ever do, if I were in control of my actions..

I did end up giving P. the tablets the following day, but not before having taken a fourth dose that morning, this time – again – in a very compulsive manner. There was no reasoning whatsoever, just acting: I simply couldn’t not take them. This made me realise that I really needed to view the tablets in the same way I did my scalpels and cords [all of which I had handed in to P. two days earlier, feeling too out of control to be safe with them]; while I was still having this strange reaction I just couldn’t manage the tablets responsibly.

It took a good while after that final dose before I felt completely back to my normal in-control self, and I carried on working with the crisis resolution team through the weekend and most of the following week, just to be safe.

I am really glad that I had as much support available to me as I did during this time, because it was incredibly frightening to be so out of control. The experience was very different to other times when I have felt out of control. Whilst what came out in the midst of this whole ordeal – feelings, thoughts etc – were things that were almost certainly already brewing inside, it was – at least the way I look at it – triggered by outside factors. And that’s quite a scary thing.

All the very best,


Nuts, Allergies & A New Perspective – An Anaphylactic Adventure


Allergies. Always a fun thing, and something which I have lived with all my life. I mean I am allergic to pretty much everything: apart from having bad asthma and being lactose intolerant I am also allergic to tree pollen, grass pollen, dust mites, strawberries, kiwis, pineapple, cats, dogs, horses, rabbits etc etc…..and NUTS.

Up until fairly recently I’ve always been pretty ‘lax about it all. I mean, sure, it’s annoying having to chug down antihistamines by the bucket load all year round, and being all itchy and stuff is not much fun, but all in all I have been pretty unconcerned about it. In spite of having been rushed to hospital a number of times, I’ve just never really taken any of my allergies particularly seriously, never thought of them as something potentially life-threatening. That is until a little while ago, when, having inadvertently eaten something which contained nuts at a seder meal, I went into anaphylaxis.

It was a delayed reaction, so I was already on the bus on the way home, when it struck, and when it did, boy did it strike hard and fast. Even though I could instantly feel that this was very different to an ordinary reaction or to an asthma attack, I of course got my inhaler out and started puffing away. Only it wasn’t helping. At all. And this is when I got really scared. My tongue was swelling up and my throat was closing, and I really didn’t know what to do. Thankfully the guy who was sitting next to me [who didn’t know me at all] must have also realised that something was very seriously wrong, because – without even asking me if I needed help – he got his phone out and called 999 while at the same time [incredibly impressively] had the presence of mind to call out to the driver to stop the bus so he could tell the emergency service where we were. Within only a few minutes the paramedics arrived [one of the definite advantages of living in a big city], gave me a shot of adrenaline, transferred me to the ambulance, hooked me up to an IV drip and took me to the hospital. They gave me another shot of adrenaline and added some sort of steroid – I think – to the drip. To be honest, even though they told me exactly what they were doing, I wasn’t really with it enough to properly take it in. All I know is that by the time I got to the hospital I was breathing fine, and so as soon as the doc came to see me I was like “Can I go now?”

Not knowing all that much about anaphylaxis I figured that all was fine and well; the adventure was over, I was exhausted and just wanted to get home and to bed. But the doctor insisted on me hanging around. By the time I finally got discharged it was just gone 2 a.m. Had I known at the time about the high risk of anaphylactic relapse once the adrenaline stops working, I probably would not have badgered the doc to discharge me ASAP.

I was clearly in shock, because while waiting for the doctor to agree to discharge me I updated my Facebook status with a comment about being at A&E of Hospital X, when in fact, it later turned out I was actually at Hospital Y. Just as well that I turned down my friends’ very kind offers of coming out to see me, ‘cause I would have sent them to the wrong hospital.

The day after, I was still pretty blasé about the whole thing, joking about it with some friends I was meeting up with. Even their telling me off for not ringing them had much of an effect. It wasn’t until later that evening that it finally hit home: I could have died. In fact, had the stranger on the bus not acted as quickly as he did, I most likely would have.

As a consequence I have now been to see my GP and have been issued with an EpiPen and strict instructions to never ever take any risks with nuts. I have trained friends and house mates alike on how to administer the injection, should I be unable to do so myself, and I read food labels religiously.

This experience really has jolted me into action, into taking my allergies seriously. And it has also highlighted something quite important: that although I in an odd way feel almost OK with the idea of suicide, should life get me to that point, I would not want to die without feeling that I was ready for it.

I’ve spent a number of sessions with A. talking about this. About the difference between choosing to die and just dying. I know it’s a bit of an odd concept, but in many ways it makes sense. It’s not the dying I’m necessarily afraid of, it’s the not being ready, the fear of not being given the chance to say goodbye to those I love.

This, by the way, should not be interpreted as me saying that I am going to kill myself tomorrow, or even the day after that; it’s just a way for me to explain why, suddenly, I feel almost paranoid about eating things. It’s that unpredictability factor, the inability to control things. I can check and double-check food labels, but there are no guarantees. And it really scares me.

So, from now on, my EpiPen and I are joint at the hip.


PS. Why oh why is word check telling me I mean ‘profylaxis’ every time I type anaphylaxis..?

Being Unwell And Feeling Cared For

Cure For The Ill

Cure For The Ill

I’ve been unwell. Still am, actually. Pneumonia. It’s a bit of a long-winded story, but in short it involves leaving a psychotherapy session early for the first time ever, thinking I was better when I wasn’t, and ultimately on Friday having to go see the doc urgently.

I had just left a session, and on the train home I suddenly had this terrible pain in my chest. And it was a pain I had felt before; two years ago I had a pneumonia, and this was what it felt like.

Anyway, once I got to the doctor’s, she had a good listen to my chest, took my medical history and told me she felt confident that what I had the previous week was more than likely a flu virus, but that I had milder symptoms than most, since I’d had the flu jab, and that despite this my immune system was compromised enough for me to develop a pneumonia. [Ironically, the reason I have the jab every year in the first place is so as to make sure I don’t come down with secondary complications, such as this..] Since I have a history of pneumonia, starting in exactly the same way [top right lobe a week after having had another illness] and because my asthma was kicking off like crazy, she decided that she’d rather start me on antibiotics straight away, than wait for test results to come through.

So, home I went, antibiotics in hand. Crashed into bed, and this is where I’ve been stuck up until just now. I have to say, antibiotics are a wonderful thing once they kick in. You really do feel so much better, very quickly. Of course there was always a chance that the pneumonia I had was viral rather than bacterial, in which case the antibiotics would have done nothing for me, but ‘thankfully’ it turns out that it must have been bacterial.

While in bed I have been thinking about being unwell. It’s something I have a fair amount of experience with. You see, I have a really poor immune system, and so whenever something’s going ‘round, I tend to catch it. I mean, I had swine flu long before it became fashionable. But, also – as I have mentioned in previous posts – I am prone to what I call psychosomatic fevers. Other people get upset tummies when they are stressed out; I get a temperature. And this is what’s been on my mind, these last few days; the relationship between having a genuinely poor immune system and getting psychosomatic illnesses.

You see, I don’t think it is entirely chance that I get ill very easily, weak immune system aside. When I was little I was always seen as someone who could look after myself, someone who was responsible and dependable and able, far beyond my years. My parents tended to assume I’d be OK on my own, and mostly I was. I’m sure it was sometimes hard for my parents, this fierce independence I had; not so easy parenting a child like that. But, at the same time, they were very busy people; three other kids, one of whom really rinsed them clean of any energy they may have had. So, as confusing as it may have been for them, I’m guessing it was also something of a relief that I didn’t seem to need much looking after, that in fact, I was perfectly able to look after myself as well as anyone else.

But, when I was unwell, it was almost as if my parents’ parenting instincts suddenly kicked in, as if this was the kind of parenting they could understand, could relate to. After all, they are both trained in healthcare professions. This was something they knew what to do with. And so, as a consequence, when I was unwell, those were times when I truly felt like a child, like they were my parents and I was in their care.

At all other times I always felt equal to my parents. I always felt like I was an adult, just like them. And to a large degree, I think that’s how they and other adults around me saw me, too. But when I was sick, well, I could allow myself to be the child I really was.

So, is it so strange that I am prone to getting ill? Even now, as an adult, when I am ill, both of my parents will call me, will want to know how I am, will maybe even worry a little. This in contrast to other times, when I am nearly always the one to call them, nearly always the one to ask what’s going on for them.

Of course, something like pneumonia is a very real illness, it’s not psychosomatic, not imagined, not exaggerated, but in the midst of feeling so terribly poorly, I also do feel cared for, in that very special way.
Just like I did back then.

It’s interesting stuff.


How I’ve kept myself busy. The Square-1 cube puzzle. It’s a fair challenge, getting it back into a cube shape, and then getting all the colours right.



Flashbacks, Rubik’s Cube & Replacement Therapy

Had a couple of pretty good days this week. A blessed change, let me tell you. Even managed to go into town one day to do a bit of shopping. Can’t even remember the last time I did that. Didn’t stay out for a particularly long time, only a bit over an hour, but it was still good.

I’m flying out to Sweden in a couple of days time. I’m a bit nervous about it, the actual flight. I really hope it will be a good day of fewer flashbacks. That said, I have come up with something that does help me cope with them when I’m out and about; repeatedly solving the Rubik’s cube.

I kind of discovered it by accident. The Rubik’s cube had until January of this year been one of those puzzles I had never been able to solve, but always felt I should be able to solve. Then in late December I came across a video of Justin Bieber solving it. In about a minute and a half. Justin. Bieber. That really was the drop for me. I mean, seriously, if Justin Bieber could do it, then surely so could I? Right? So I set about figuring out how to do it. In fact, I even set myself a goal of being able to master the cube in less than 2 minutes, by the time this break in therapy is over.

Took me four hours of straight and stubborn trial and error before I finally cracked it the very first time. After that it took me more than ten minutes to do it, start to finish, so I carried on working at it. Slowly I got faster. I learned a few shortcuts and solve-time went down even further. And still I kept at it. Until I felt confident I could out-cube young master Bieber any time of the day. I’m now down to a semi-respectable personal best of 51 seconds. [I say semi-respectable, but of course I’m nowhere near the current world record, set by Feliks Zemdegs, at 5.66 seconds] (Ed.: New world record set by Mats Valk at 5.55 seconds in March 2013).

In the process of doing this, I realised that I had been having significantly fewer flashbacks, and that those that I did have, were much shorter, because my brain was already kind of half-way out of them, focusing on solving the Rubik’s cube.

So, in the last several months, I’ve brought my cube with me pretty much everywhere, and it really does make things easier. Up until I discovered this I would usually just stay in, because the things I needed to do to come out of a flashback were things that were either self-soothing grounding techniques, which – while very effective and calming – look very odd from the outside, if you don’t know what I’m doing – or they were things that could be done fairly discretely, but were down-right unpleasant for me [like using smelling salts or sharply snapping a rubber band against my wrist].

Yes, I look like the biggest geek ever sitting on a bus or train solving my cube over and over, but at least it is something that both works and isn’t nasty. Also, you’d be surprised at how many people strike up conversations with you, when they see what you’re doing. It’s such an instantly recognisable and iconic toy, most people have something to say about it.

Anyway, I’m hoping that this little trick of mine will make the flight to Sweden a bit less difficult. My sister and nephew will be meeting me at the airport, so once I land, I should be OK.

I’m staying with my sister for a week, and my other sister is also coming over, so I’m really excited about this trip. I’ve not seen them since my birthday last year. Also, I am hoping that spending time with my sisters will help me out of this pretty serious dip I’ve found myself in.

I’m also going to stay at my father’s for a couple of days. Feel a bit nervous about that. I’ve not seen him in about two years. We do keep in touch through occasional phone calls, but I’ve not visited him in the last couple of years. I’m hoping seeing him will be OK. I think going to visit him is a lot less emotionally charged than going to see my mother, who still lives in the house I grew up in, where there are reminders of the abuse I experienced all over the place. My father’s place is very different, in that respect. At the same time, of course it’s not just the place that is the problem with going home; it’s also the inter-personal conflicts this family trauma has caused that I have to deal with. And that, of course, is the same regardless of where I see my family. So, we’ll have to wait and see how it goes.

Really missing therapy at the moment. Actually not just therapy, but A. It’s hard trying to find a good balance; to not switch all emotions off in order to protect myself, and at the same time not allowing myself to go too deep into my feelings and risk getting stuck and acting out. So, a therapy session or fifty would be pretty darn dandy right about now.

I’ve had about a million people asking if there isn’t anyone else I could see while A. is on maternity leave. The truth is, that if I really wanted to, of course I could find someone to see short term. In fact, I considered seeing our newly appointed social worker at shul, for a while. But, the thing is – I do have other people to talk to. I have my sisters, my friends, even the Samaritans. So, it’s not just talking I need. It’s something else, too. It’s that special space that therapy creates, and most importantly, it’s the therapeutic relationship I have formed with A. over the last three years. [Three years today, I just realised – Happy anniversary us!] It’s not something that can be easily emulated. And I think that, as hard-going as it is – not having therapy, not seeing A. – it would frustrate me to no end, trying to create something similar to what I get from therapy. Looking for something different feels much more productive.

Anyway, it’s getting late.

Thanks for staying up with me.

All the very best,


For more posts tagged Rubik’s Cube, including one using the Rubik’s Cube to talk about identity, click here.

My Life Today

My Life Today

Because Tomorrow Might Be Good For Something


“..I’m not crazy, I’m just a little unwell
I know, right now you can’t tell
But stay awhile and maybe then you’ll see
A different side of me..”


I guess there are no easy ways to talk or write about this, but as this is supposed to be an honesty-focused blog I’ll just tell it to you straight: last week I accidentally on purpose overdosed on my medication. It really wasn’t a bid to end my life, at least I don’t think it was [although I accept that others may disagree]; I didn’t even take all the tablets I had, but it was still a significant enough dose to potentially do some damage. I know my meds pretty well, and I would like to think that I know what would and wouldn’t kill me, but, the truth is – of course – that there is no way to know for sure just how much a of a medication would be lethal for a specific individual; what’s safe for one person may well be fatal for another. In some weird and rather irrational way, it was more like I was testing if it would be possible to swallow enough tablets in one sitting to get to a lethal dose. I think that was my confused logic, anyway, [which, obviously, isn’t logic at all].

I did frighteningly well in terms of establishing that it would indeed be possible, had I wanted to take more pills than I did. But, the second I had swallowed the first lot I instantly regretted it, and I decided I should go to A&E, since the meds I’m on [Amitriptyline] are known to be very toxic. In fact, the highest therapeutic dose is not that far off a dose that would be classified as toxic, and that is the precise reason why Amitriptyline is only prescribed as a last resort, when all other types of anti-depressants have failed.

Again, entirely irrationally, I decided that rather than calling for an ambulance I would get on a night bus to my local A&E, so I got myself out, started walking to the bus stop and only just missed the bus, so I carried on walking in the general direction of the hospital. After a while I began to get really unsteady on my feet, but was still clear enough to realise that passing out on the streets of London on a Saturday night would not be a great idea, especially with a lot of drunk people out and about. So I went back home, got on my bed and blacked out before I could call for an ambulance.

When I woke up it was all dark, so I thought that it was still night, but when I looked at the time on my mobile I realised that it was in fact the next evening, and I’d been out cold for nearly 24 hours and had missed several calls and texts from worried friends. This really freaked me out, since I normally wake from even the quietest of noises.

That evening I again attempted to get to A&E, but was simply still too wobbly and I had to give up and go home again. On Thursday I had an appointment with my GP, and I told her honestly what I had done, and that since I don’t even really know why I did it, or at least, the logic in the moment really wasn’t logic at all, I really needed some extra support. She heard me and then asked whether I wanted to call the mental health crisis resolution team myself, or if I wanted her to do it. I opted for the latter, because I know I would most likely have gone home and talked myself out of ringing them.

So, at the moment I am seeing the crisis team every other day. I’m not suicidal, at least not on a conscious level, but I also think that having some extra support over the next few days is a good idea, wherever that support comes from.

The crisis team, being tied to the NHS, have, as they always do, questioned both my therapy and my therapist on the grounds that they are not NHS and must therefore automatically be harmful to me.

That really makes me angry, since I am a big believer in psychotherapy in general, and in my therapy in particular. For me, psychotherapy is the most appropriate way of disentangling my thoughts and emotions, and to ultimately get away from the intrusive flashbacks and nightmares which push me to act out in this rather extreme way.

That said, what with my therapist being on maternity leave, I do feel that as much as the crisis team and I have very different ways of understanding psychotherapy and the effect it has, I am still glad to be seen by them, because it means that, should I act out again, or miss a scheduled appointment [whatever the reason] they would send the police and ambulance round to check on me, as I am in effect an out-patient and they have a duty of care. Also, they are available to talk to 24/7, should I find myself struggling with thoughts of self-harm or suicide. I can’t promise I would definitely call them if that happened – in fact – I’m fairly certain that I wouldn’t, but at least the option is there.

Hopefully things will improve soon, so I can start looking forward rather than backward, because, who knows..


“..tomorrow might be good for something..”




Heading, and quotes at the beginning and end of this entry are from Matchbox 20‘s track Unwell. © Rob Thomas

Long-term therapy vs. short-term crisis resolution

I’ve been thinking about how to update my blog the last few days, but I’ve not felt able to do it. Partly because all my energy has been channelled towards fighting my way out of a flashback. Again and again and again. Times a million. It really has been kind of never-ending – and the only way that has worked to give me any kind of longer break has been to either make myself black out or to cut, neither of which is particularly healthy.

To say that it’s been a difficult few weeks would be a severe understatement. It’s been pretty relentless, and at times I’ve really just wanted it all to end, because there is only so much a person can cope with. The crisis team have been quite good (well, the nurses more so than the pill pushing doctors) – but it’s also been hard to find myself back in this system. Also, I’ve felt that the crisis team has been quite critical of the therapy I’m doing with A,, and they have frequently asked me if it’s really helpful to have this kind of therapy when it’s made me have such terrible flashbacks. Also, my relationship with A. has been questioned. More than once have they asked me if I’m not a little bit too attached to my therapist. My answer throughout has been that it’s not the therapy which is causing these flashbacks, it’s a combination of going home and then returning a week before therapy resumed, in conjunction with a number of other factors.

I’ve defend both my choice of therapy and the relationship I’ve worked so hard to form with A. on numerous occasions, but it’s tricky when you’re talking to people who see medication and CBT as the cure for all ills. It’s not so easy to explain that the whole point of therapy is that you form a close relationship with your therapist, and that it allows you to look at other relationships and see how they may be played out as little echoes within the therapeutic relationship. That in my veiw CBT is a bit of a band-aid, masking deep-rooted problems, and wouldn’t be at all appropriate for the kind of issues I’m dealing with. That, yes – this is really hard work, and yes it does bring difficult things up, but that it’s my feeling that the only way for me to be able to find some sort of peace within my past is to dare look at all those difficult things and realise that I can in fact survive the pain. And that’s what the work I do with A. is all about.

Despite this difference of opinion, having the involvement of the crisis team has also been of value – I’ve felt held by the fact that I’ve been seeing them on the weekends, when I don’t see A., and that they’re available to talk to on the telephone 24/7. It does help. But, that does in no way mean that I’m any less committed to the work I’m doing with A. I see it more as a crutch between sessions – for the time being – so that I can carry on with what I do in therapy.

Following yesterday’s adventures at A&E when I had my cuts stitched and SteriStripped – with a tetanus shot thrown in for good measure – R. from the crisis team came down to have a chat with me, and she said that she felt that my self-harming behaviour was going in the wrong direction, that it was escalating rather than subsiding, and that she felt I needed more support than what the crisis team can offer, and she suggested she make a referral to Drayton Park Women’s Crisis Centre.

I’ve stayed there in the past – years ago – and it has been helpful, so I agreed to R. making the referral. I think Drayton Park could be a safe option while I’m in the middle of this crisis. To me it seems like a happy medium – I’ll still be able to see A., but rather than going home to a lonely room battling flashbacks and urges to self-harm, I’d be going back to Drayton Park, where I’d be able to talk to someone about my urges to self-harm. Also, I know that they will be a lot more encouraging in terms of doing the type of work I do with A. han the crisis team has been.
Fair enough, I’ve never actually been at Drayton Park when I’ve been in therapy, but I have several friends who’ve stayed there and have felt that the Drayton Park staff have been very much in favour of them carrying on seeing their therapists while they’re staying at Drayton Park. Essentially what they say is that your therapist is your long-term support and who will help you with long-term goals, and Drayton Park is a place to feel safe while being in the middle of a crisis. It’s a short-term add-on support system, not a replacement for your long-term aims and goals.

Anyway, I’m meeting with one of the workers at Drayton Park tomorrow for an assessment, and it still remains to be seen if they’ll deem it appropriate to offer me a place for the week.

Think it’s time to hit the hay now – hopefully I’ll be able to sleep a little more than I have been in the last few nights..

Be kind to yourselves.


Little S At Six Months

Little S At Six Months

Survival – Knowing When You Need Help

Things aren’t going so well.
Downward spiral at breakneck speed, I feel frightened at how quickly I’ve gone from doing really well to finding myself stuck in a pattern of inward turned anger and self-harm. A few weeks and I’ve managed to undo all the hard work I’ve put in these last four years.

Realising that I’ve lost control of things I have been forced to accept that I need someone to help me, and so on Monday I called my GP to make an appointment. Couldn’t get one until Wednesday, and let me tell you, that felt like a very long way away.

These last few days have really have been rollercoaster like, oscillating between trying to stem flashbacks by using cords and scalpels and later on feeling very very angry with myself for not having been able to stop myself from going back to this very destructive behaviour. And it’s becoming increasingly erratic. This morning I woke up and immediately reached for a fresh scalpel to punish myself for having, the previous night, used a cord coiled around my neck to make myself pass out. – There’s no logic to it, and I can see that. Yet, I don’t seem able to stop myself from acting out in this way.

I’ve been trying to do things in the last few days to try to prove to myself that I’m not quite such a bad person as I sometimes think I am. To show myself that I’m not a waste of space, that I am of some sort of value to the community. But it’s hard to hold on to those thoughts when it has to come through external actions rather than from some internal place..

Saw my GP this morning. I say my GP, but really, I saw a GP. I saw Dr H., a newbie doctor, in her own words. This turned out to be a pretty good thing; she listened to me and seemed to really take in what I was telling her, in contrast to some GPs who’ll whack out the ever-so-patronising “How Depressed Are You?” multiple choice questionnaire at the earliest possible opportunity in a bid to avoid having to actually listen to the patient. Given this opportunity to be heard I tried to be as honest as I could with Dr H. It’s hard, when you’re a bit of a people-pleaser like me, and you don’t want to make the other person feel bad, but I think I did OK.

Dr H. made the decision that she didn’t just want to start me on some meds, but that I needed to be seen by the mental health crisis team. She asked me to wait in the waiting room while she sorted it all out, as she didn’t want me to leave the clinic before she knew for sure that I’d definitely be seen by the crisis team. A reassuring touch, I have to say. I’ve certainly come across doctors who say they’re going to make a referral and send you off with a “Don’t call us, we’ll call you” style parting phrase.

As it turned out the crisis team wanted to see me at noon, so I essentially ended up going straight from the GP practice to the Highgate Mental Health Hospital. Felt quite anxious about going there, as I was still experiencing flashbacks and I was worried that I’d become too confused and disoriented on my way there. Also, I didn’t know what to expect. It’s been several years since I’ve been in touch with any form of NHS run mental health service. A lot of my work has been aimed at getting away from this system.

Then I was thinking of the advice I would give – and have given – friends who have found themselves struggling in the way I am right now: accept any help you can get, whatever that may be. This is not a time for pride, it’s a time for survival.

Talking to two members of the crisis team I did feel a lot better. They reassured me that their aim is to support people struggling with self-harm and suicidal ideation in their homes, rather than pushing people into wards, which may not at all be the best for a person. They did – of course – make it clear that if they felt I became more destructive and posed a serious danger to myself they would have to put me on a section order, but that their aim was to find alternative ways of supporting me. They made the decision – based on my previous history – that they’ll want to see me every day for now, and also asked if I would give them permission to liaise with A. regarding what would be the best way to go about things. Initially I didn’t feel comfortable with that, but in the end I decided that maybe it could be helpful to not try to keep different parts of my life separate. As I was a little unsure of A.’s number I told them I would ask A. to call them instead.

My session with A. today was quite difficult. I was just feeling so low, so defeated at finding myself back in this very dark place. I’m finding it very hard to motivate myself to not give up, keep falling into thinking that no matter how hard I try, no matter how hard I work, I will always come crashing down..

A. said a few things that made me feel a bit better, made me feel like I’m not entirely on my own. But it’s still very very hard. She also added an extra session for me this week – first thing tomorrow morning – which felt comforting. Also I have been given the number for the crisis team, which is a 24 hour care service, so I can call and talk to someone on the crisis team at any time between seeing them in person.

I hope this will help stop me falling any further. Because last time I felt the way I feel right now I drank half a litre of anti-freeze and ended up in ICU..

So, if you have any to spare, thoughts and prayers are much appreciated.


Powerlessness, Asthma & Echoes From The Past

Feel like I ought to be given some sort of medal or badge today. It’s been one week since my last therapy session, and so far it’s been manageable. Moments of feeling somewhat lower than usual, but absolutely within the range of what I can cope with without freaking out.

That aside, today I feel like a prisoner in my own home.

The last few Fridays I’ve not been attending our Friday meetings, because B. – a former therapist of mine, whom I chose to terminate therapy with – is doing a student placement as part of her training at those meetings. I have been trying to explain both to others and to myself why I feel so strongly about her coming here, but it’s really hard to put it into words, aside from stating the obvious, that I chose to end therapy with her for a reason, and to not want to have to see her again, even in a group setting, seems – at least to me – a not unreasonable request. I would have thought that most people would not be particularly keen on having to see an ex-therapist once they have terminated therapy with that person. No?

But, of course, it goes deeper than that. It’s not just having to see her; at a stretch I could possibly, maaaayyyybeee, cope with that. No, I think this is tied in to the fact that I’d not just be seeing her anywhere, but actually in my home. And I have a feeling that this is a large part of what is getting to me; that living in this therapeutic community I ultimately have no choice in who to let in or not into my own home.

Now, let’s put this into context of my own background.
I grew up in a house where I was put through some pretty severe abuse by people living in my home; my oldest brother and also, for a time, by a foster child placed in my family. At the time I didn’t feel able to stop it, didn’t know how to speak up [lots of complex issues, as anyone having experienced abuse will know]. In the end, the only way out I could find – and not before having already suffered through twelve long years of abuse – was to kill myself. It was the only control I felt I had over the situation; the option to live or to not live. So, at the age of 17, I opted to take a cocktail of painkillers and my mother’s various medications.

Needless to say, I didn’t succeed, and – in fairness – looking back, I can see that this was probably a cry for help, for someone to see that something wasn’t right.

To an extent it worked; the abuse came to light and it stopped. Would I call this a happy ending? No. Absolutely not. While the abuse stopped and things came to light; even went to court, I couldn’t call it a happy ending.

You see, even after all of this came to light, after by brother was convicted for what he had done, and despite the fact that everyone believed what I said had happened, I was still expected to carry on seeing him at family dinners and holidays, essentially giving the message that what happened to me didn’t really matter, and his place in the family was still more important than mine.

Me being me, having spent my whole life acting as if everything was fine, of course reverted back to that old habit of acting as if I was OK, as if these messages did me no harm. Not good.

Going back to the present situation, with B. coming into my home [even though this time I have expressly stated that I don’t want her here] it evokes in me the same feelings of being helpless, of having no power over who is let into my life; that what I want doesn’t matter.

Realising that the situation wasn’t going to change, that whether I felt OK with it or not, D. would be doing her placement with us, I was faced with a choice. A) To go to the meetings, reverting to the old pattern of pretending that things are fine, putting a brave face on it. Or, B) Not go to the meetings, feeling somewhat driven out of my home, as I don’t want to be around when she’s there, even if I don’t actually attend the meeting.

So far I’ve chosen option B. I say so far, because, of course, there is an option C) Going to the meeting, and not pretend that things are OK, but to speak up with her in the room.

Now, I can certainly see that there would be some value in option C), but – and this is a big but – I honestly don’t feel I am at a place yet where I would be able to do that. And as long as I feel that way, as long as I feel that going to the meeting would make me go back to acting OK, I simply don’t see how that would be a healthy choice. And so, for now, I do the second best; I preserve the boundaries I have set up by choosing not to attend the meeting. I accept that I can’t change B. coming to my house, but I don’t need to be around when that happens.

Except today.

Today is a beautiful, hot, sunny day here in London. Gorgeous, really. It is also the perfect weather for death-by-asthma. The government has even gone so far as to issue a smog alert for this bank holiday weekend.

Despite this, not wanting to be in the house when B. is here, I still tried to brave it this morning and went out. Unfortunately, I had to turn around and head back to the house, because I just couldn’t get enough air in my lunges; the weather and the pollution was simply too much.

So at the moment, I’m in my room, using my inhaler, feeling more than ever as a prisoner in my own home.

Oh well, at least I have the internet here, and I can spend my time exploring where my feelings stem from, and then plague the world with my findings in the form of a blog entry!

Happy Easter, Passover or Spring – whatever floats your boat!

All the very best and much much more,


PS. The trick is to keep breathing.