I Survived A Therapy Break

We’ve been on a break, my therapist and I. A Pesach / Easter / training combo break. Leading up to the break I was very aware of Little S. inside having a lot of feelings about P. going away. This, even though, I – or should I write we..? – were also going to be away for almost the entire break. There was an increased and very distinct need for emailing and texting P. to make sure that she was Real.

I think that what Little S. means by someone being Real is a combination of them not forgetting her when she’s not with them and for them to not abandon her when things get rough. But, at times it is also a way to express genuine fear that maybe the relationship with the other person is too good to be true, it is asking for reassurance; are you Real, or just a figment of my imagination, because it seems so unbelievable to me to have someone who is really there for me when I need them.

A break always brings out a lot of abandonment issues, especially for the Little S. part in me. From Adult Me’s vantage point this makes perfect sense, I understand why this happens; so many people in my life haven’t been there when I’ve needed them the most, so, naturally, when someone as important to me as P. declares that she’s going to be away, it is bound to trigger all manner of emotional echoes inside me. But, as much as Adult Me can see this, it doesn’t actually make it any easier for Little S. to deal with the anxiety and sadness that these separations inevitably bring to surface. To Little S. the worry that P. might be going on a break because she has been too much for her is very real, as is the fear that P. might – during the break – realise that she prefers not to have to deal with her ups and downs, her neediness, her constant need for reassurance.. Before a break the tension inside Little S. will keep building, until she is convinced that a) there is no way she can survive this break and b) that, should she through some form of miracle survive, there is no way that P. will ever choose to return.

A few years ago, back when I was still seeing A., I would never ever talk about any of this directly with her before a break. I would suffer in silence, and maybe – very maybe – mention it after the break was over, although generally in a very brief glossing over kind of fashion. Before a break, I would just feel the anxiety mounting, bring me closer and closer to breaking point, but I would not really acknowledge just how difficult breaks are for me. This, of course, lead to breaks being absolutely catastrophic in my mind, and it was extremely rare that I would not need to be working with the crisis resolution team during them.

In the first year or so of seeing P. I slowly and very gradually became better at talking around the subject of breaks, slightly dipping my toes in it, so to speak. I would talk about it in the way Adult Me sees it, intellectualising it, rather than actually feeling it. In part this was because I didn’t really know how else to approach it; intellectualising difficult feelings, analysing why they are triggered, rather than actually feeling the feelings, is how I have got through an awful lot of difficult times; it is a well beaten path. But, as I have been working more and more closely with P. to try to notice that there are feelings stirring inside, and to identify what those feelings are, I can now fairly often allow myself to stay with them.

The other part of why – back in the early days – I didn’t really talk about the feelings was that many of those feelings [particularly the ones to do with abandonment and separation, and the shame of needing someone else] belonged more to Little S. than to Adult Me, and Little S. hadn’t yet found her voice. Or rather, I hadn’t yet found a way to allow Little S. to express herself directly in our therapy. But, eventually we cracked it; first by letting Little S. email and text P. between sessions and then by Little S. speaking directly to P. in sessions [as opposed to through Adult Me]. It’s been a long journey, but I do feel that Little S. is now reasonably able to take part in therapy when she wants or needs to.

So, this time around, on top of the many emails and texts asking P. if she is Real, she was also able to not only talk about her feelings prior to the break, but she was able to experience them while she was talking about them. And that felt like a very big step forward.

The break in itself actually went quite well this time. Of course we all missed seeing P., and there were a few times when either Little S., bob, or Adult Me needed to email P., but there wasn’t quite as much anxiety to deal with as there might have been, had we not been able to experience and explore some of the feelings before the break, had P. not helped me make space for these feelings to be not only shared, but also heard. P. doesn’t ever make me talk about difficult feelings, but she does actively encourage me to try – and we set the pace together. She makes it very clear to me that it is safe to allow feelings out, that she wants to hear about them, whether it be in session or in an email, a text or in a drawing. And, possibly most importantly – especially to Little S. – she reassures her that she will be able to bear those feelings, that they won’t be too much, and they won’t result in P. no longer wanting to see her. That feeling and talking and talking about feelings is very much welcomed and valued in our relationship. Even when it’s scary. Especially when it’s scary.

Another thing that P. and I do to help Little S. manage during breaks and particularly difficult times, is to let one of P.’s ‘little friends’ – a soap stone hippo called Ringo [*not his real name, gotta protect his privacy!] – stay with me. I will also leave something of mine with P. to further strengthen the sense of connection between us during the break. As Little S. would say: “Something to help you ‘merember’ me, in case you start to forget.” It may sound like a childish thing to do, this exchanging of personal artefacts, but, Little S. inside is just that – she’s little – she may live inside the body of an adult, but she still finds comfort in having something physical to hold on to help her connect with P. So, no matter how silly it may seem to outsiders, taking Ringo with me everywhere I go, it makes all the difference in the world to Little S. And that’s worth a lot!

So, when you’re facing a break in your therapy, here is my advice to you: listen to what all of you need to make that break as bearable as possible. Don’t allow your Adult Self to stop your Little from getting what they need to manage it. To the best of your ability, talk about the fears and worries that all of the different parts of you carry about this break. Write it in a letter if it is too hard to say it out loud, if the fear of rejection gets too much. And if needed: ask if Ringo can come stay with you. And, if asking for a Ringo to stay with you feels too much; start small. I was given this tip by one of my readers many years ago, and at first, having something personal of P.’s felt way too overwhelming for me, so we started by my borrowing a random pen of hers that I could use to write in my journal with. And a little note from P. to help reassure me that she wouldn’t forget me and that she would be back.

But now that I have worked my way up to having Ringo stay with me, I wouldn’t have it any other way.
And neither would my sisters’ kids!

Be good to your Selfs.

xx

IMG_3885

A drawing Little S. made last night to show how happy bob, she and Adult Me feels that P. is finally back

 

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A Much Delayed Update

It has been such a very long time since I last posted anything on here, it feels all but impossible to try to catch you all up. And maybe it’s not really the most important thing in the world that I do? If you’ve been following this blog for a little while, you’ll probably already have some idea of what sorts of ups and downs you might have missed in the last few months. After all, there is nothing new under the sun. And if you have only just arrived on my site, well, feel free to hop on board as you are.

So, I’ll just begin with where I am at now. Literally.

I am at home, very slowly trying to allow my body to recover from the hell I have recently put it through. I suppose you could say that I had been on a slippery slope to nowhere for a long time, and a number of weeks ago, my therapist started a referral for me to go to Drayton Park. I was already with the crisis resolution team at this point, struggling enormously with trying to keep myself safe. Being at a very low point, the only way I could really manage was by taking sleeping tablets. Paradoxically not to kill myself, but to stop myself from doing so. Perhaps not the best way to manage, but it was all I could do at the time. The referral to Drayton Park took longer than usual for a number of reasons that I won’t bore you with, and being asleep most of the time while I was waiting was the only way I could think of to stay safe. After all, if I was knocked out there was no way I could actually act on my suicidal impulses. Right?

A little over a week later I was finally given a place at Drayton Park, and that felt like such a relief. But it wasn’t all smooth and simple. The depression and the suicidal ideation, the flashbacks and the urges to self-harm came with me. And, although I have stayed at Drayton Park about a million times [OK, maybe not a million, but certainly enough times to feel at home there] this time felt like a distinct travel back in time. You see, the only room available was the one room I have always dreaded being put back in; the room I stayed in during my very first time at Drayton Park. Yes, I have stayed in other rooms there more than once with no problem, but this one holds some particularly bad memories for me; this is the room I died in. And this time it isn’t an exaggeration – I was found lifeless in that room, and while I have no actual memory of it, I was told by the doctors in ICU that I had been clinically dead for a number of minutes by the time the managed to bring me back.

The reason I was found lifeless in that room all those years ago was my own. I had brought a substance into the place that I shouldn’t have, and being the kind of person who – owing to deep seated psychological issues – is far more afraid of being found to have broken The Rules than to tell staff that I was afraid of what I might do, and that I needed help, proceeded to ingest said substance. So, this time around, being back in that room, I was overcome by memories of standing in front of the mirror in the bathroom swigging pure poison from a bottle, quickly followed by a handful of Smarties to mask the bitter taste, looking at myself, hoping to die.

This time around I used my one-to-one sessions at Drayton to talk about these memories, about the sense of being thrust back in time and the feelings evoked, and I was immediately and repeatedly offered to switch rooms. But, me being me, I thought there might be some therapeutic value in being able to stay in the same room, look at myself in the same mirror, but having a different outcome. I thought that the feelings brought out by staying in this particular room might be used for healing, for psychological growth, even. Sadly, I seem to have completely forgotten that the reason I was back at Drayton in the first place, was that magnetic lure of release from life – and that I wasn’t strong or stable enough to do this kind of work at this particular time. And it proved to be a costly miscalculation on my part.

Prior to admission to Drayton Park I had purchased another bottle of a similar but far more lethal poison, and it was still sitting at home, waiting for me. Thus, part of the objective of my stay this time was to get me to a place where I would be stable enough to be able to safely go back to my flat and pick up the bottle to hand it in to staff, without having the urge to down its contents on the way back. I was working very closely with both P. and staff at Drayton to get to this place, we talked about my feelings, about the reasons for those feelings and how best to keep me safe – we really were doing everything possible to get me out of this perilous place I had been perched at when I first arrived.

Admittedly, at first there was a fair bit of pressure for me to bring the bottle back at the earliest possible opportunity, but this plan was thankfully changed, when I – with the help of P. and staff who have known me for a long time – were able to to explain that bringing back the Bottle before I was ready to do so wouldn’t necessarily make me any safer; I’d just order another one online, or I’d feel pushed to act out in some other equally dangerous way. [Having a severe nut allergy means that I am never further than a chocolate bar away from having the means to end my life]. Instead we planned trial runs to my flat where I would go into my flat but not into my bedroom [where the bottle of Poison was kept]. I’d pick up post or a change of clothes, but there was no expectation that I bring the poison back. This worked. Twice. In fact, during one of my visits home I managed to – relieved of any pressure to perform, so to speak – bring back the anti-sickness tablets that were also part of my suicide plan. It was hard going back to the flat; in spite of our best efforts to have strong safety plans in place and in spite of never staying longer than ten minutes, I never quite felt safe.

Partway through my stay P. went on leave, as did K. This meant that most of my usual safety net was no longer available to me. And that, too, was hard. Destabilising, is the word that comes to mind. I knew that I would not be able to stay at Drayton until they were back from their respective leaves, and that didn’t feel good at all. So, fear of going home – having still not been able to hand in the Bottle – intensified. Towards the end of week two I was asked to make a Week Plan, to add structure to my stay, which I did. Knowing how hard it had been the two previous times going back to the flat, I only planned visits home for every other day, so as to not overwhelm myself.

But on the very first day of following my Week Plan I knew I wasn’t stable enough to be able to go home, even for a short visit. It was one of those very bad days with lots of flashbacks and thoughts of how much better things would be if I were dead, so, I switched days on my planner, did my Tuesday plan on the Monday. And it would have worked out fine, except the next day was just as iffy as the previous one, safety-wise. I wanted so badly to be able to stick to the plan, though, since otherwise there would be fewer opportunities to go home before actually being discharged. And I knew discharge would be coming, whether or not I had brought the Bottle back.

I want to pause here to make something perfectly clear: there was absolutely no pressure from staff for me to go home that day – none, zero, ziltch – and that is really important to understand – they were all working hard to keep me safe. All pressure to go home that day came from me, and me alone. But, in the end I did decide to push on through. And that turned out to be a near fatal mistake.

When I first got to the flat on that third trial run I felt anxious, but sort of within the realm of what I could manage. So, before entering I rang Drayton to say that. All was good, I sat in the kitchen for a bit, I even wrote an angry note to my flatmates about the washing machine not having been fixed during my two week absence. Everything felt normal.

And then suddenly it didn’t.

I know that I went and took a sleeping tablet in desperation. At the time I really thought it was just the one, so, that is what I told staff when I called them in panic. They stayed on the phone with me until I was out of the flat and I got a taxi back to Drayton. I saw my main worker when I got back, and prepared to go to bed [after all it was a sleeping pill I’d taken]. We agreed that they would check on me every hour, just to make sure I could be woken up, since I have a history of taking overdoses in a state of dissociation, and I couldn’t say with 100 per cent certainty that I hadn’t done so this time, too. [Entering a dissociated state is actually far more common than you might think, especially for people who have suffered severe abuse and have used dissociation as a coping mechanism all their lives]. About quarter of an hour later I knew that I must have done more than just taking a single pill, because I was feeling nauseas and drunk and was losing control over speech and movement. So, I went straight to the staff office and knocked on the door. [This is, incidentally, the exact opposite of what I did that very first time at Drayton]. The last thing I remember is lying on the sofa in The Quiet Room with a member of staff next to me, being told that an ambulance was on its way.

I woke up in hospital. I knew immediately that I was in hospital, because nowhere else on earth are you met with those cold harsh lights, and those ugly tiles in the ceiling. That is my first memory. My second one isn’t so much a memory as a feeling, a feeling of immense relief that I was alive, that I had in fact woken up. And I knew that was a big deal. Every other time I’ve woken up in hospital I have felt nothing but sheer anger that I hadn’t died, wondering what I had done wrong, thinking about when I could do it again.

I spent a number of days in hospital being given antidote every twelve hours. And that was one of the most scary experiences ever. The relief of being alive soon wore off, and the fear of not knowing whether or not I would actually live – and what that life might be – took over. I knew that things were bad, really bad – not just from the vast number of tubes coming out of my body or the urgent frequency with which blood tests were taken day and night – but by the fact that when I tried to ask doctors and nurses would I be OK, they avoided eye contact and would generally mumble something along the lines of Let’s not worry about that right now, sweetie.

It wasn’t until the very last day, the day I was due for discharge, that I finally found out the truth of just how close it had got. I didn’t ask the doctors or nurses this time because I didn’t trust that I could deal with what they might have to tell me, instead I reached for the journal folder at the foot of my bed. And there it was in black and white. Multiple organ failure. Prognosis: poor.

Of course, by the time I read those journal notes, I was out of immediate danger, but it was still a shock to see it. This was what I had done to myself.. I had put kidneys, heart and respiration at serious risk. When the first tox screen came in they didn’t think I’d live, and if I did I’d likely have reduced function of at least some of those organs.

I have now been at home for about two and a half weeks. I am extremely fatigued and am sleeping most of the time. Any little thing exhausts me. I have had follow up tests and the results are not great. They aren’t anywhere near as bad as they could so easily have been, but I am also not recovering at the rate the doctors would have hoped. So there will be more tests to come. In short, I still don’t know the full extent of the damage I have done to myself.

But, I am alive.

And I have a lot of feelings about that.

 

I hope that I will be able to write more about those feelings soon. –ish.

xx

 

 PSI want to make a special mention that I have chosen not to share what has happened with my immediate family, in an effort to spare them pain and worry. At least until I know for sure what I am dealing with. So, should you be someone who knows me in person – and knows my family  – please make sure to keep this information to yourself. This blog is semi-anonymous, not for my sake, but for the sake of those close to me. It is also a place where I can safely share my feelings, and that means a lot to me.

 

 

Feeling Bad & Being Bad – Allowing ALL of Your Selfs into Therapy

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“And, what if – after everything that I’ve been through – something’s gone wrong inside me? What if I’m becoming bad..?”
 “I want you to listen very carefully: You’re not a bad person. You’re a very good person who bad things have happened to. You understand? Besides, the world isn’t split into good people and Death Eaters – we’ve all got both light and dark inside of us.”

*

The above is a transcript from Harry Potter & The Order of the Phoenix – film, not book – an exchange between Harry and his godfather, but – Death Eaters aside – this could just as easily have been a dialogue between Little S. and P. It’s a conversation they have had many, many times, and one – I suspect – that they will continue to have many more times.

The concept of somehow being bad because of what has happened to us is a common one among people who have suffered sexual abuse. The sense that our experiences in childhood has somehow tainted us, marked us for life, is something I think many can relate to. And even though the adult part of us may well be able to recognise that this is not the case, for our inner child this is a stain that feels all but impossible to remove. It has sunk so deep into the grain of what we were made of, that removing it feels as if it would mean removing a part of who we are. This is especially true if the abuse began when the we were very young, before we have had a chance to form a strong sense of our Selfs.

Little S. struggles greatly with being able to understand that feeling bad and being bad are not the same thing. She finds it almost impossible to distinguish between the two. And that makes perfect sense; because what was happening to her made her feel terribly bad inside, at the same time as one of the abusers made it his favourite pastime to reinforce again and again and again that the reason why he was doing what he was doing to her was precisely because she was bad, the two concepts got mixed up. So, ‘feeling bad’ became ‘being bad’. And, between the abuse and being fed the black and white fairytales that most children are fed, where bad people do only bad things and good people do only good things, yet another truth was formed: if you do something bad, you must be a bad person. Even the dialogue above goes on to state that “What matters is the part we choose to act on. That’s who we really are.” It’s a lovely sentiment, on the surface – our actions define who we are, we can choose to be good rather than bad. But, – and it is rather a big but – for a child in an abuse situation, choices are limited, and more often than not we had to do things which we perceived as being bad [playing along, saying the things the abusers wanted to hear, we may even have been taught to act ‘provocatively’ by the abuser and so on..] all of which even further instilled in us that we were indeed bad. We didn’t just feel bad about what was happening or about the choices we were forced to make, we were bad. And because we were bad, we deserved the bad things that were happening to us. After all, the villain of the fairytale must inevitably be punished; the bad guy banished, put in prison or even killed..

As I am writing this I am aware of Adult Me wanting to step in, to protest, to tell Little S. that she is not the villain, she is not to blame. That those choices weren’t really choices at all, and those actions [the ‘playing along’, the ‘saying the right things’..] were extraordinarily complex survival skills dressed as what looked like bad choices. And that is a very good sign of health on Adult Me’s part, both the wanting to step in to protect Little S. from those misconceptions, and the ability to see them for what they are – but, Little S. needs therapy, too – Little S. especially needs therapy – she needs to be allowed to explain what the world looks and feels like to her, she needs the space to share her truth and to have that truth heard and accepted. So, for now, Adult Me will need to take half a step back.

And that can be a real struggle in therapy. I’ve written previously about this difficulty, how in my work with P. we found that the way to allow Little S. to speak, without Adult Me interfering or even censoring, was not found inside of the fifty minute hour, but in emails and drawings between the sessions. And even that didn’t happen overnight. It took conscious effort on behalf of Adult Me to stop herself from editing Little S.’s communication with P. And that is a hard, hard, thing to do. But, it has finally given Little S. a voice of her own. And, recently – with a lot of hard work – Little S. has even been able to have her very own fifty minute hours with P.

P. and I work a lot on trying to understand what feelings, thoughts and beliefs belong to which parts, and also to recognise that they are all valid. [Not necessarily true, but absolutely valid]. The different parts agree wholeheartedly on some things and disagree wildly on others, and for me, it has been incredibly helpful to stop and listen to what the different parts have to say.

When Little S. writes emails, she does so using childish phrases that Adult Me would never use, and in session she speaks with the kind of language and grammar and even tone of voice that a child of four or seven or nine would – even when she writes by hand, she does so in her own writing. It’s not about acting – I’m not pretending to be a child again – I am just temporarily holding back the other parts, I am turning down the background noise, so that Little S.’s voice can be better heard. And it is so so helpful. Not just to Little S., but to all the different parts of my internal system. It helps us notice where different parts struggle, and it helps us understand where the different internal conflicts take place. And it feels good to know that each part can exist both in its own right, and as part of the whole system; that the whole is simultaneously both exactly the sum of its parts, and so so much more.

I still struggle with this – it is simply not an easy job, understanding oneself and ones inner workings – and it has helped enormously having P. actively encourage all the different parts to speak up. This is one of the things that makes therapy so great: you’re not doing it on your own, there is a second heart and soul in there with you.

I know that working in this way – understanding the whole as being made up of many different parts – is not for everyone – and I also recognise that I am only at the very beginning of this journey myself; I am in no way an expert in the field, but, I would recommend anyone to give it a go. Maybe sit down and allow your Little to write a letter – about anything [it doesn’t have to be about something particularly difficult or painful] – in his or her own words, without the self-consciousness of your Adult Self holding them back.

Whether or not you choose to bring what you write to session, I think that you will discover both how difficult it can be to separate one part of yourself from another – and just how much your Little has to say, perhaps even things that he or she may not have been able to say before. And that has got to be worth quite a lot, don’t you think?

Do be kind to your Selfs.

All the very best,

xx

The Harry Potter and Sirius scene

Every Part Of You Needs Therapy : Baby S.’s Story

impossible shapes

“Looking Back At My Younger Self” – An ‘impossible’ drawing I did, inspired by Reuterswärd, Escher and Penrose

Whenever I think about who I am, I always reach the conclusion that there is more than one answer to that question. I have written about the concept of every person having different parts to them before [the baby self, the child self, the inner teenager, the adult etc], but I have been wanting to write more about each individual part for a while now, so that is what I am planning to do in the next few posts. [Emphasis on planning here – no promises, plans sometimes don’t pan out]. I have no idea how interesting this will be to anyone else, but as it is something P. and I do a lot of in our therapy [exploring, defining, trying to understand the different parts and how they work – and sometimes don’t work – together in my internal system], I know that it will be a useful exercise for me. So, I am going to be a selfish blogger for a little while. And I use the word ‘selfish’ here in the purely positive sense of allowing myself and my needs to come first. That said, I know from the emails I have been receiving from you over the years, that many of you share similar stories to mine, and I hope that you, too, will get something from this exercise – maybe even take a little time to think about your own internal system?

I am going to start with Baby S., because that is where the person I am now begun. Baby S. is simultaneously the very oldest and the very youngest part of me. She is the part of me who was there from the beginning, the tiny pre-verbal part of myself. She is the one who was around when I was living at the Indian orphanage in the first seven months of my life, she is the one who first experienced being abandoned, first experienced loss. When this happened, I don’t know, because I don’t know if I was born at the orphanage or if I was brought there. And if I wasn’t born at the orphanage, then I don’t know whether a stranger found me somewhere on the streets of Calcutta and handed me in, or if my birth parent made the decision to take me there themselves, because it was what they believed would be best for me. In fact, I don’t even know if my separation from my birth parents was forced upon them or if it was a choice they made. All I know is that at a very early age I experienced the extreme trauma of being abandoned. 

Baby S. is also the part of me who for the first seven months of my life experienced a serious lack of human-to-human [or rather adult-to-child] contact and care. This I do know for a fact. I know this, not from having a conscious memory of this lack of close contact, but because I have been back to the orphanage I came from, and I have seen the little metal cots shared between two or three babies [hence correcting myself earlier; there was most certainly human-to-human contact, but not adequate adult-to-child care]. This inadequacy was not because I came from a particularly bad orphanage, it is simply down to the fact that I come from an exceptionally busy and over-crowded one. [Actually, scratch ‘exceptionally‘ – it is probably no more busy or over-crowded than any given orphanage in India]. The nuns working at this orphanage no doubt tirelessly do so because they care very deeply about all these abandoned babies and children, and are passionately wanting to do what they can to provide for their tiny little charges, but there are simply not enough of them going around, and – sadly – their job becomes never ending rounds of nappy changes and bottle feeds – conveyor belt style – to ensure that no child is missed. So, in spite of these heroic efforts, precious little time is spent with each individual child, and the opportunity to form any kind of meaningful attachment is virtually nil. 
I was ten years old when I went back to visits the orphanage I came from, and even as a child of that age I was acutely aware of the Baby S.-part inside, and I didn’t need an adult to explain to me how lonely and frightening it must have been for me as a baby to be in that environment. It is hot, crowded and noisy, with little colour or comfort. No toys, no safety blankets, no dummies [that’s British for pacifiers], no cuddly teddy bears.. Bleak, bare and loud, with hardly any Big People to care for you; a very sad environment for anyone to be in, no matter what the age. Needless to say, visiting that orphanage had a big impact on me, and it has played a huge part in why I have always been so much more interested in understanding the effects of starting out in an environment like that – void of significant caregivers to form attachments to – than wanting to find my birth parents. 

Anyone who has been adopted will be more than familiar with Everyone Else’s two compulsive-intrusive questions: “Do you know who your real parents are?” and “Would you like to find your real parents?” My answer is invariably: “Of course I know who my real parents are – I grew up with them, and, no, I’m not hugely interested in finding my birth parents.” An answer, which is more often than not, met with disappointment. It is as if, being adopted, one ought to have a strong desire to trace one’s biological roots, and if you haven’t got that desire, well, you must be lying to yourself. I genuinely don’t feel I am lying to myself; I just haven’t a strong desire to trace those roots. That isn’t to say that I won’t ever feel that desire, merely that – as of now – it’s not played a big part in my life. Yes, of course I have at times wondered about them, but – somehow – I have always had a really strong sense of who my parents were and what they were like – even though I couldn’t possibly have any conscious memory of them. Maybe it is a biological imprint that we are born with..? I don’t know. All I know is that I’ve always been far more interested in understanding how my early life experiences have shaped me, than finding out who the people I came from were. So, let’s go back to exploring that: 

Apart from being abandoned, Baby S. is also the one who had to deal with the most extreme life change out of all of the parts that make up my internal system. At seven months old her whole life was turned upside down and inside out when she was brought from the orphanage in the loud and crowded city of Calcutta, to a tiny coastal town in the very north of Sweden. I don’t think the climate or cultural change could have been greater. This was a new life, in a whole new world, with strange new smells and sounds and ways of doing things. And a whole new set of people. A mother and a father and two older brothers, one of whom was also a deeply traumatised young child [2.5 years old on the papers, in reality closer to four] brought over from an entirely different part of India, at the same time. 

One of the things that is always said about me as a baby, post adoption, is that I was “such a good little baby”, meaning that I was a very quiet baby; I rarely fussed and I slept more than most. I was also out of nappies before I was a year old. Every time another story gets retold for the umpteenth time of what a good baby I were, I always have an urge to scream that “Of course I didn’t fuss! Why would I?” and I can feel that it is the Baby S. part of me having this reaction. By the time I was seven months old and came to Sweden I had already learned that there was no point in crying if I needed something, whether it be food, a new nappy or a cuddle, because no one would come, no matter how desperately I cried.. I simply had to wait my turn, whether I understood the concept of waiting or not. So, I stopped crying, stopped fussing, stopped trying to get the attention, care, and love that I so desperately needed. Because I knew that it was pointless. And the sleeping? Well, I’m no expert – but it sounds to me like either a stress relieving coping mechanism kicking in, or early depression. Or, more than likely, both.  

Because of Baby S. inside of me, I experience intense anger whenever I hear people asking new parents “Is he a good baby?”. What’s the answer to that? “No, she’s an absolutely terrible baby, she demands feeding and changing and she won’t let us sleep for more than half an hour at a time!” To me, good does not equal quiet – and I know that my sensitivity to this kind of talk is really Baby S. having an emotional respons. She can’t help but to kick off when someone starts talking in those terms. Which is great – finally she is able to express herself, be it through emotions rather than words. 

That brings us to one of the challenges of allowing Baby S. space in our therapy. Baby S. is pre-verbal, she doesn’t have language – or rather, she hasn’t got words. So, how can she be part of the therapy? I haven’t got a definitive answer to that. I mean how do you get a pre-verbal part to speak? My solution so far is to work on getting Adult Me to become more attuned to Baby S.’s emotional signals, so that she can verbalise on Baby S.’s behalf. It’s not an ideal solution, because dressing a baby’s emotional world in adult vocabulary requires translation, but it is a starting point in terms involving Baby S. in our therapy. The first step to giving Baby S. a voice in the outside world is to listen for it. So, I try to get Adult Me to actively listen to what Baby S. is communicating. It’s sometimes – often, actually – rather a difficult thing to do, especially if what Baby S. is desperately wanting to say, happens to be the exact same thing that Adult Me is wanting to hide from, and still needs to defend agains.

I believe that Baby S. only ever communicates truths – she has not learned that truth can be manipulated to suit one’s needs – and conflict can occur when Adult Me is not yet ready to face that truth. Still, it is work in progress. Through Adult Me’s active listening, and through her translation into spoken word, Baby S.’s feelings can be brought into the open in the space I share with P., and together we can work with it. 

And there is a lot of stuff to work with. Trust me. 

There is an excellent blog called Everyone Needs Therapy – a sentiment I share. Only I would take it one step further and say that Every Part Of You Needs Therapy.



Take good care of your Selfs,

xx 

A Little Bit About Attachment Based Therapy

Parent & Child – Building Blocks and Stepping Stones

I had an email recently [notice the common thread from my previous post..?] from a reader who wanted to know more about the kind of therapy that I am currently doing: attachment-based psychoanalytic psychotherapy. [Just drips off the fingertips when you type it out in full, doesn’t it..?]. So – after some thinking – I wrote her back, and I thought I would use a modified version of what I wrote in that email as a basis for this post, because it turned out to be a really good thinking exercise for me. What is it like to be in attachment-based therapy? In what way is it different to the more classic psychoanalytic therapy I did before?

Before I go on to recreate my email reply I want to make very clear something which I failed to highlight in my original response, namely that it is attachment-based therapy that I am doing. This has absolutely nothing to do with the highly controversial pseudo-“therapeutic” approach known as ‘ attachment therapy’, which is something I would never choose to do, nor would ever recommend to anyone anywhere, as it is, in my view, nothing but a re-scripted form of abuse trying to pass as therapy, practised on already traumatised children.. Strong words, I know, but then I do feel very strongly about calling something therapy that is clearly not therapeutic.. And I really don’t want anyone to think that this is the kind of treatment I’m undergoing three times a week.

Now that’s out of the way – let’s cut to the email and talk about attachment-based therapy:

Having previously been doing more classic psychoanalytic therapy with A., I would say that – in my experience – the main difference that theattachment based-part offers is that it is a very open and relational approach to therapy. Of course, all therapy is about forming a solid relationship with your therapist, but attachment based therapy puts a very heavy emphasis on building a real and genuine relationship with your therapist. It is an open invitation to form a strong attachment with your therapist, an opportunity to learn that it is OK – and safe – to attach to someone else, to allow yourself to be cared for and to depend on another person. I think this is an incredibly valuable [and often unbearably frightening!] thing to be offered, particularly for people who have not had the opportunity to experience safe and secure attachments during childhood, whether through having been given up for adoption, through abuse or through having had parents who simply lacked the skills needed to be the safe adult that all children need and deserve.

I suppose that being in attachment based therapy is a little bit like being re-parented. Not in a being-bottle-fed-again kind of way, nor in the sense that you don’t have to take responsibility for yourself or your actions, but in that you are given the opportunity to learn [ever so slowly!] to trust that someone else can really and truly be there for you, to be allowed the luxury of finding out that you are not ‘too much’ and that you can be loved and accepted for all that you are, including the bits that you feel ashamed of, the bits that you would rather keep hidden, even from yourself.

In our nearly two years together [two years? already!?] P. and I have slowly built our relationship through mutual openness. I try to be as open as I can with her, and she, too, shares openly of herself with me. I don’t mean that she self-discloses lots, but that she shares of who she is with me. The best way I can explain it is that rather than putting on her ‘therapist hat’ for me at the start of each session, she simply is who she is all the way through, and part of that is that she is a trained therapist, and she utilises the skills she has gained through her therapist training in our relationship. [I have no idea if this makes any sense to you, but I hope it does].

P. talks directly and honestly with me – no ‘blank canvas stuff’ – and I try to do the same. In fact, it is often through her openness that I dare do the same. P. has even talked about the love she feels for me and the special place I have in her heart, [now, that’s a Special Kind Of Scary, believe you me!] and she will tell me if something I say moves her or makes her angry or sad or confused or proud or frustrated, etc etc etc. And that really is one of the greatest things about our therapy, because it gives me a model to copy, makes it OK for me to tell her if something she has said or done moves me or makes me angry or sad or confused or proud or frustrated; it is very similar to how a parent who allows themself to show and share a wide range of emotions with their child, teaches the child that it is fine to do the same, that all feelings are OK and can be accepted. To me, this is also one of the more obvious differences between the psychoanalytic therapy I was doing with A. and the attachment based therapy P. and I are doing – the way P. provides a model to follow.

One of my absolute favourite things about P. is that she’ll laugh out loud if I say something she finds funny – with no attempt at all at trying to hold back her response in favour of analysing my joke. Of course there is a fair bit of analysing going on in our therapy, too, but it is much more a case of us jointly thinking about why certain things come up and looking together at why other things don’t, than P. silently sitting there analysing my every word. And if I sense that P. is hesitating to say something to me,  or seems upset by something I’ve said, we can talk about that, too. – Trust me, she doesn’t get let off the hook if I think she is holding back! Or if she is bringing attention to something more than I feel is warranted, for that matter.

Another important aspect of our relationship is that P. is constantly reassuring me that she is there for me and that she can cope with what I tell her [in the same way that a secure parent would reassure their child]. P. also encourages all the different parts of me [Little S, Adult Me, bob etc] to take part in our therapy and to share their feelings, so that we can begin to understand the dynamics inside, to see how the different parts work together and what causes friction and inner conflict. I’m not talking about dissociative personalities here, just the very ordinary internal structure we all have – the inner child, the responsible adult, the raging teenager etc etc.

Because I sometimes find it difficult to allow Little S. to speak in session [Adult Me tends to get embarrassed by her childish neediness and her desire to have a mummy who will look after her and love her] P. encourages all the different parts to email or text her in between sessions and over weekends, so that those parts that perhaps couldn’t be heard in the session have a chance to share, too. And that really has been an invaluable tool which has added a whole different dimension to our therapy. 

When I [or Little S. or bob] contact P. outside of session she will respond to texts and emails not just with a quick one-liner saying “We’ll talk about it on X-day”, but instead she responds in full to whichever part contacted her, sharing her thoughts, and also reassuring me that she really wants me to share what’s going on with me between sessions, that she wants to know.. Just like a parent would. Or at least should.   – I won’t lie, it has taken me a looooong time to feel OK with reaching out to P. between sessions, in all honesty a lot of reassurance is still needed – but, thankfully, she is happy to provide that, and that is so helpful to me, because I do need that reminder regularly. Very regularly.  We’re not talking P. telling me that it is OK to write her once or twice or even fifty times, we’re talking at the end of most sessions and after most of my emails..

Also, P. knows me well enough by now to know that – despite her constant reassurance – one of my greatest fears is that I will break her through asking too much of her, or through sharing too much Bad Stuff, and that those fears tend to crop up immediately after a difficult session, so she will often save a few minutes towards the end of a session for me to ‘check her out’. [As I’m writing this, I can hear her ever so gently asking ‘How are you feeling now? Do you need to check how I’m feeling..?’]

There is of course lots and lots more to write about doing this style of therapy; there is no way that I could fit it all into a single post, but I do hope that I have, through my rather rambling writing, given you at least a little bit of an insight into what being in attachment based therapy can be like.

Of course, this is just my experience – someone else might have a completely different idea of what attachment based therapy is like, and – as I know I’ve written on my blog previously – therapy is far less to do with the theoretic approach – that’s merely a backdrop – and much much more to do with the relationship and chemistry you build with your specific [or, in my case, terrific ;) ] therapist.

But I suspect y’all knew that already – ‘cause you’re a clever lot!

All the very best,

xx

PS. You are more than welcome to disagree with my opinion of attachment ‘therapy’, just don’t expect me to change my view about this particular subject..

Found Some Words..

OK, so I’ll admit it; I wrote that heading in the hope that I will find some words now that I start writing.. There are no guarantees at this stage, especially regarding the quality of said words..but, I’ll give it a whirl just the same.. [Bear with, bear with..]

So, I made it though The Break. It was a lot tougher than I thought it would be. In the past I have generally found that the beginning of a break is harder, because it is as if my body clock is telling me “today is a therapy day” and my whole being is expecting a solid fifty-minute-hour to release tension. The longer the break goes on, the less loudly my internal therapy clock ticks, because it is getting used to not having that thrice weekly outlet and is slowly finding alternative ways of managing in its absence. This time, however, was different – and I can’t really say why, because I don’t know why. If I were to venture a guess, I would say that it is to do with the fact that I am far more attached to P. than I ever was to A. [or even D.], and the longer we were apart, the more panicked I became that the connection P. and I have formed was beginning to disintegrate. I did find alternative ways of managing this time too, but it didn’t really alleviate the panic. In simple terms: I missed P. terribly – not just the service she provides, but I missed her, I missed us. And, again quite differently to past breaks, I allowed myself to admit that I was missing her. I made no attempts to try to convince myself that she’s not that important, or that it’s really just the structure of my week that I miss. And, as much as that made the break more difficult, I also know that this is real progress. This is me genuinely allowing someone in, allowing myself to become attached, taking a risk I usually wouldn’t take. So, definitely progress.

So, what did I do during my break? Well, in part I did what you could see in my previous post: tons of art. I also did some tie dying and some bleach printing and some shoe painting – all of which was very enjoyable and helped the hours and days pass in a positive way. Some samples below – feel free to scroll past, to read the rest of this post..

 

Tie-dye project
No children were harmed in the making of this collage!

 
 

Bleach print project
Again – No children were harmed. However, one tee was a complete fail and consequently got randomly squirted with fabric paint!

 

Still with me? Ok. Back to the tale of “How I Survived My Therapy Break”..

So, the arty-crafty stuff definitely helped a lot, but no matter how busy I tried to keep myself there was always going to be times when I really really really missed therapy – and P. I knew this was going to happen before the break, and – again unlike other times – it was something P. and I had talked about beforehand. In the year we have been working together, forging this relationship, therapy breaks have always been very tough. They just bring out so much Stuff [paradoxically, this is also one of the reasons why breaks are useful]. At times, even weekends have been torturous, so we’ve had to come up with things to help me feel close to P. even between single sessions. 

One of the things we do is that P. will lend me her pen – the one she always has in her ridiculously big handbag. This idea with the pen was actually a suggestion from one of you readers a while back, in a comment after another post about therapy breaks. This – having P.’s pen – has really been great for me; I use her pen to write in my journal, and it makes me feel a little like we are having a session. [By now I know P. well enough to be able to predict what her response might be to the things I say/write]. So, for me, a pen is great. P. did once offer to lend me one of her scarves [we are both Scarf Wearing People – it’s a thing!], but at the time that felt way too much for me, far too overwhelming, and I declined her offer. A pen, on the other hand, was just right. Small and emotionally manageable. 

Apart from the pen P. has also sent me photos of herself. This has been especially useful if we have had a particularly rough session and I’ve been worried that I’ve become too much for her – because that way I can look at the photo she’s just taken and I can see for myself that she is still OK, that, in spite of the things I have told her, she hasn’t broken down or disappeared. I have also sent her a picture of me, so she can carry me with her when she is on leave. P. often uses the phrase “I carry you in my heart” and, for me, her having a photo of me, is an extension of that. 

Prior to both this break and the previous one, apart from P. lending me her pen, I lent her a bottle of nail varnish. I’m very into nail art [the only sort-of girly thing about me], so her wearing/having my nail polish makes me feel more connected to her. I don’t really think that P. would forget me without these physical reminders – after all she ‘carries me in her heart‘ –  but the Little S. part of me finds this very reassuring, and since that is the part of me that generally struggles the most in P.’s absence [because she is the one who has experienced the most abandonment] it makes sense to pay extra attention to her needs. Especially when Adult Me finds it difficult to fully own those feelings herself..

Finally, the thing that probably helps me the most during breaks:  writing letters. Real, physical, handwritten, old skool letters. I let any part of me [Little S., Adult Me, bob..] write P. whenever they want, and they can decorate the letters and envelopes in any way they want, so P. can see who it is from. I will then hand deliver the letters, because that means I get to go to the place where I see P., and it’s another step towards reassuring the different parts of me that even though P. is away, our therapy space still exists. So, that is something I would really recommend.

Wow! Looks like I found rather a lot of words in the end! Hope that’s OK.

Be kind to your Selves.

xx

While Waiting To Find Some Words..

..here are some semi-random bits of art I’ve done recently.

Challenged myself to try out different styles of art to help me through a recent therapy break. [Hopefully I’ll write more about that break, soon.] I am always telling people [especially children] that anyone can draw – so whenever I decided to draw something I didn’t know if I could, I dedicated it to one of the kids in my life, because – really – how can I tell them that they can draw anything they want, if I hesitate to try new things myself?

So, good people, grab yourself a pencil or crayon or brush and do some art!

It’s good for the soul.

xx

A wolf I drew this morning

 

Another wolf
[A theme is emerging..]

 

A Very Frightened Little Bunny Rabbit
[Little S drew this to contrast a previous drawing to show how vulnerable she felt
We used it in a recent therapy session]

 

A seahorse – just to see if i could draw one

 

Roaring Grizzly Bear
[Watched a bunch of online tutorials on how to draw tribal style animals, so can’t take full credit]

Cinderella Wolf
[Therapy drawing: Little S drew this howling tribal wolf on a night she felt very sad
and wanted to let her sorrow out]

 

Polygonal Bunny Rabbit

 

Spacescape
[Playing around with some new Copic markers]

Maskrosbarn / So Near And Yet So Far
A drawing by Little S about attachment, separation and daring to reach out
Which dandelion is trapped inside the chain link fence?

 

Only recently discovered that this style has a name: zentangling or zendoodling..

 

A rough tattoo design I did on comission for a random chap I met at the library

 

I Love My Kånken
An ode to my favourite backpacks: Fjällräven Kånken

 

Devil's In The Detail?

Devil’s In The Detail?

 

Not Better, Not Worse – Just Different
[Therapy drawing about sometimes feeling like my brain doesn’t work in quite the same way as other peoples’]

 

 

My very first dragon


 That’s all, folks! 

Progress And Pain – Parenting My Inner Child

It’s been a long time. It’s been too long, really. I suppose that I just needed a proper break from things. Or, rather, I needed to use what little energy I could muster to deal with the bare essentials, hence largely withdrawing from the world, both online and in my day-to-day interactions with family and friends.

It has been, and still is, a very rough ride. Since the beginning of the year I have had three rounds of crisis team intervention and one admission to Drayton Park, all with that burning hopeless feeling that ‘It’s pointless, it won’t make a difference’. Except, from an external point of view it has; I am still here now. I might not have been.

Therapy is the one thing that I feel is actually going well. But, as is so often the case when it comes to therapy, ‘going well’ involves a decent sized chunk of dizzying pain. The therapeutic process has never been heralded as a ‘free from unwanted side effects’ type of medication..

I continue to build my relationship with P., doing this quirky little two-steps-forward-one-step-back dance, putting my most deep seated fears and trust issues through their paces. Progress is slow, but at least we are moving. Those of you who have been in therapy will know exactly what I am talking about; one session and – almost out of nowhere – you find the courage of a lioness and take a giant leap forward, right across the abyss – the next two sessions; withdrawing and giving in to age-old fears of being let down, needing to test and re-test your therapist, to check that they really are for real, that those encouraging words won’t turn out to just be empty promises.

My need for emotional hand-holding and reassurance has known no limits in these last months and weeks, and consequently P. has had to work darn hard for the pennies.. She tells me that she knew what she was signing up for when she decided to take me on, I argue that she can’t possibly have known – because she didn’t know me – she then agrees that this is true, but reassures me that she has a very strong sense of what she can cope with, and that I really really really am not too much for her. And we take another tiny step forward.

As I have said many times before, I don’t think therapy is meant to be easy, I think it’s meant to be worth it.

Right now we are standing at the door of a two week therapy break, so – predictably – all of Little S.’s abandonment fears are awakened and hyper aroused. Adult Me works hard to try to explain that it will be OK, that we have been through – and have survived – many, many breaks before, and that we will get through this one, too, but Little S. clamps her hands firmly over her little ears, certain that this is the end of the safety and pseudo-mothering we have enjoyed from P.

What it boils down to is that my inner child, just like any other child, has no real understanding of time, and so a separation from P. is not a temporary state, but is permanent and absolute. And, again like most children, when the caregiver goes away, she assumes that this must be because of something she has done. This, in turn, makes Little S., go back and forth between putting unrealistic pressure on herself to be ‘all good’ [because, if she is very very good, maybe P. won’t leave her] and needing to self-punish [because she must have been bad, to make P. go away]. Adult Me works very hard to try to help regulate the extremes, but parenting your own inner child is not an easy task, especially when so many of Little S.’s thought patterns and beliefs still live on in Adult Me.

I still have three sessions left before the commencement of this two-week-bordering-on-eternity break, so there is time to talk this through with P., time to get another shot of reassurance injected, and hopefully that will alleviate at least some of Little S.’s [and Adult Me’s] anxiety.

We’ll see..

Anyway, take good care of your Selves, and thank you all so much for sticking with me through this hiatus, of sorts.

xx

Running Up That Hill

*

And if I only could
I’d make a deal with God
And I’d get Her to swap our places
I’d be running up that road
Be running up that hill
~ With no problems..’

*

*

I’m not sure what Kate Bush had in mind when she wrote that song, those lyrics, but they really speak to me. I feel I’ve been running up that hill forever now, getting nowhere. It isn’t getting any easier, and I really wish there was a way to swap places, to make that deal. I’ve been running up that road for so many years, but nothing has changed. Lots has happened, but nothing has changed.

Last night was the 21st anniversary of the very first time I tried to end my life. I was seventeen and I didn’t know how to make the abuse stop, didn’t dare communicate what was going on – what had been going on for as long as I could remember, because I didn’t know what would happen if I did. So, at the very end of my mother’s 50th birthday I swallowed a cocktail of random anti-depressants, mood stabilisers, sleeping tablets and painkillers. This was before the internet, before you could google your way to the perfect concoction to put an end to your misery, and as a consequence I survived.

I woke up to a whole new world. One where – in a flurry of activity – suddenly lots of people knew about the abuse. Social services got called in. I remember so well how the head of social services – who just happened to be a close friend of the family – told me that ‘No one is allowed to make you do anything that you don’t want to do. Ever.’ Except, of course, that I would have to talk to the police and I would have to go to court, whether or not I wanted to, because those were not things I had the choice to opt out of.. You see where I’m going with this? Something happened, but nothing changed.

I’ve been in therapy for years and years and years by now, and although I firmly believe that talking about what happened – in a safe environment with a therapist sensitive to my needs [as opposed to at a police station or in a court room] – is key to ultimately reducing the traumatic re-experiencing of abuse that I am faced with every time I have a flashback, it feels as if that day is very very far away. Hardly even a blip on a distant horizon.

I know that if I manage to find a way to keep running up that hill – because, trust me, therapy can be such an uphill run – my day to day life could be greatly improved, in terms of the amount of flashbacks I suffer, in terms of being able to make and keep plans, in terms of feeling more in charge of my life. And that would be great. It really would.

But then there is that other thing. The Not Having Children.
No amount of therapy can change that. I could do therapy every day for the next two thousand four hundred and sixty-eight years, and that fact would simply not change. People are forever telling me that ‘No, that wouldn’t change. But, you might change. You might feel differently about it.’

Only I know that I won’t.

This is a wound that cannot heal. There are constant reminders to keep that wound open and bleeding. Three people in my life are currently pregnant, due at various points next year – so I already know that 2015 will be another year of Everyone Else having children. Another year of tears burning my skin as they roll down my face. Of a pain so sharp it shreds my soul from the inside..

And the problem is that every year is going to be A Year Like That. Until it turns into endless years of Everyone Else Having Grandchildren. And I can’t face a life like that. I just can’t.

Even if I managed to somehow accept that I won’t have children, I just can’t accept a life without them.

I will try, as I have been trying. But, I know that one day, soon, I’ll run out of steam. And I’ll stop running.

It is sad.
But it is what it is.

xx

Running Up That Hill [A Deal With God] Copyright © 1985 Kate Bush

Out Of Control – Me On Steroids

There I was, having been told that there was a good chance that my hearing loss was due to my own actions. Not an easy thing to deal with. Part of me absolutely felt angry with myself, was blaming myself; I have a natural tendency to be very hard on myself – especially when the consequences of my actions turn out to be severely negative. But, there was also another part that just felt confused, because whilst the second most recent overdose was certainly a serious one, the most recent one was one where I didn’t ingest more than about half a teaspoon of the chemical, and I couldn’t quite understand how it could have had such a drastic effect on my hearing. But, clearly it had.

The ENT specialist had prescribed a high dose of Prednisolone which I was to take for a week in the hope that it may reverse some of the recent hearing loss. The name of the medication did ring a bell at the time, but not loudly enough for me to clock why, so I went down to the hospital pharmacy and picked the medicine up. It wasn’t until I got home that I remembered that this was a medication which a previous GP had refused to prescribe when my asthma was really bad, because she felt it was too much of a risk, putting me on it. There were two reasons for this: firstly, that people with a history of serious mental health issues are particularly prone to react badly to this medicine, and, secondly, that I have in the past had extreme adverse reactions to three other medications [one of which I was reacting to when I took the second most recent overdose], so the doctors are always very cautious about prescribing any non-essential new meds to me.

But, there I was with the medication in my hand, not knowing whether or not it would really be a good idea to take it. Yes, this medication could potentially save me from needing cochlear implants down the line, but, at the same time, if I did have a really bad reaction I could end up putting myself at considerable risk. The ENT specialist wasn’t someone who knew me well [or at all, really], so when he prescribed it, he did it on the same premises he would for anyone else; ‘Worth trying, no harm done if it doesn’t work’, whereas I knew that this medication could spell real trouble for me.

There was a part of me that was genuinely scared of a bad reaction; I knew perfectly well the horrible feeling of being out of control because of a medication. I had been through it three times.. Yet, there was another part that so badly wanted to be able to do something to reverse the damage I had apparently caused.

I spent a week going back and forth, unable to decide what to do, talking it through with lots of people, knowing full well that, ultimately, it was still my decision to make. I did speak to my GP [well, technically, the receptionist spoke to her on my behalf], and she said that it would be ‘perfectly fine’ for me to take the steroids, and – after all – I had had no adverse reactions to the steroid injections I was given when treated for anaphylaxis.

In the end I decided that I would give it a go, because I knew that if I didn’t I would always be wondering ‘What if..? What if..?’.

Still, to be on the safe side, I decided to start the course early Monday morning, so that if I did have a bad reaction I would be seeing P. later that day. [With two of the three medications I had previously reacted badly to, it had happened literally within a few hours of taking the first dose]. I also had a doctor’s appointment on Tuesday, and scheduled a ‘just-in-case’ appointment with K., my synagogue social worker who I have been seeing semi-regularly, for Wednesday afternoon.

Monday came round and I took the first dose, which – as this was a high dose treatment – was a good handful of pills, making me feel as if I was actually overdosing on tablets. By the time I was due to see P. – about six hours later – I already knew something wasn’t right. I could feel things firing in my brain, rapid electric sparks in my head, and it was as if I couldn’t keep track of my own thoughts. It was a truly bizarre experience. – Anyone who has ever been seen by the mental health crisis team knows that one of the questions you will be asked during the assessment is ‘Are you having racing thoughts?’. Being prone to deep depression and suicidal ideation rather than mania I have always answered ‘No’ to that question, not really knowing what ‘racing thoughts’ actually were. I’m telling you, by noon that Monday I knew exactly what they were – and it was freaking me out, big time!

So, I had a crazy rambling session with P. that day, very unlike any other session I have ever had. I also spoke to H., my care coordinator, that same afternoon and she sorted out a referral to the crisis resolution team for Wednesday, as it was clear I was not in a good way and would likely need the extra support, particularly over the weekend.

On Tuesday morning I went to see the doctor – an absolutely lovely F2 who I hadn’t met before. By then I had taken the second dose of Prednisolone – more out of a sort of manic compulsion than anything else – and consequently the reaction was getting worse. I had also used a surgical scalpel and cut myself very badly in two places; enough to warrant stitches. The doctor’s reaction was ‘Come off these meds immediately – this is a really serious and abnormal reaction!’.

I explained to her the reason why I was on the treatment in the first place and why I was finding it hard to ‘just stop taking the meds’, and this young doctor was absolutely brilliant. She sat back and listened to me carefully and then took the time to make five or six phone calls – while I was still in the room – to get hold of an ENT registrar to find out what the implications of stopping the treatment would be for my hearing, so that we’d be able to make an informed decision. The ENT registrar told her that as treatment had been delayed by several months already [Urgent NHS referral, remember?] it was unlikely that my hearing would improve, that the specialist who prescribed the steroids probably felt it was worth a shot – even if it was a shot in the dark – because sometimes people do respond, even with delayed treatment. But, the registrar concluded, in light of the extreme reaction I was having it certainly wasn’t worth staying on the meds, as the odds of success were so small.

I felt really reassured in that moment that I wouldn’t be missing out if I ended treatment prematurely, because the odds of any improvement were so small. It made complete sense to stop taking the meds.

But, then I got home, and I was still hyper and there was so much in me saying that firstly I was already dealing with the adverse effects of this medication [the GP had explained that it would more than likely be a few days, maybe even a week, before the chemicals in my body would stop messing with my brain].. and it was only a few more days to go.. and what’s to say that I couldn’t have an equally abnormal positive reaction to these meds..? After all, my body is clearly highly sensitive to small chemical changes..

So, the next morning I took the third dose, against medical advice. This time it wasn’t manic compulsion that made me do it, but that part of me that just needed to hold on to hope, that simply couldn’t give up, even though everyone around me felt this was a very bad decision, indeed.

I spent time in my session with P. that day, exploring why it was so terribly hard for me to stop taking the tablets, even though the rational part of me knew that the chance of a positive outcome was incredibly slim – and that was really helpful, even with the chaos raging in my head.

I also had a good chat with K. that afternoon. She was characteristically open, direct and honest with me both about her anger and her disappointment that I had carried on taking the medication in spite of what the doctor had told me, and in spite of the fact that I had felt completely reassured at that point that I wasn’t missing out. I told her that I would think very carefully about handing the meds in to P. the next day, but I was also clear that I wasn’t prepared to make any definite promises, because I simply didn’t feel that I could. So much of me felt out of control and I just couldn’t say that I’d be able to do that, come morning.

Oddly, the thing that made me realise just how out of control I really was wasn’t the fact that I had cut myself so badly, but the fact that I found myself at a McDonald’s having a Big Mac.. I’ve been a vegetarian for something like twenty years, and I keep sort-of-kosher, so for me to sit down and eat something like that goes against so much of what I believe in. It is something I simply wouldn’t ever do, if I were in control of my actions..

I did end up giving P. the tablets the following day, but not before having taken a fourth dose that morning, this time – again – in a very compulsive manner. There was no reasoning whatsoever, just acting: I simply couldn’t not take them. This made me realise that I really needed to view the tablets in the same way I did my scalpels and cords [all of which I had handed in to P. two days earlier, feeling too out of control to be safe with them]; while I was still having this strange reaction I just couldn’t manage the tablets responsibly.

It took a good while after that final dose before I felt completely back to my normal in-control self, and I carried on working with the crisis resolution team through the weekend and most of the following week, just to be safe.

I am really glad that I had as much support available to me as I did during this time, because it was incredibly frightening to be so out of control. The experience was very different to other times when I have felt out of control. Whilst what came out in the midst of this whole ordeal – feelings, thoughts etc – were things that were almost certainly already brewing inside, it was – at least the way I look at it – triggered by outside factors. And that’s quite a scary thing.

All the very best,

xx